Resource Fair: Early onset colorectal cancer (2025)

Lauryn Cooney 0:00
I want to welcome everyone this morning to our Early Onset Resource Fair. For those that don’t know me, I’m Lauryn Cooney, and I have the privilege of hosting for COLONTOWN today. I am a stage four patient, and I’m also an early onset patient. So I am also excited to hear all the resources that each of these organizations have to offer. We have six organizations with us today to share their programs with all of us. We have, and I hope I say your names right. Kenley Mattis with Play it Back Music Program. They work in conjunction with Teen Cancer America. Mallory Casperson with Cactus Cancer Society. Susan Wandishin with Dear Jack foundation. Jenny Sheridan with the Expect Miracles Foundation. Kate Adornetto with Do it For the Love and Lacey Wicksall with Wish Upon a Wedding. This session will be recorded, so once we have it edited, we will put it on the COLONTOWN website in our Lecture Hall and let everyone know that it’s there. As you have questions, just feel free to type them in the chat box. And after each presenter, we will go through those. So I’m going to get us started with Kenley. He’s going to go first and tell us about the Play it Back Music Program.

Kenley Mattis 1:26
All right. Hi everyone. Thanks so much for having us. And I say us, but it’s me right now, and I am the Head Producer, co creator of a program called Play it Back Songs, sometimes called the Play it Back Music Program. We are powered by Teen Cancer America, which is Roger Daltrey and Pete Townsend from the classic rock band, The Who. It’s their foundation. And I started doing work with music in hospitals in 1997 so I would say, 28 years ago now. And I’m a singer songwriter by trade and a music producer, an independent music producer, and I got asked to go to the hospital once by a friend. I didn’t really understand what I was getting involved in. I just said yes, because I love my friend, and he was helping me out with so many music things. And I went to the hospital and I played a show in the rec room at Sloan Kettering in New York, which is where I’m from. I’m from New York City, and yeah, it changed my life. I realized that, music healed me, and it was so awesome to have people who are really appreciating me playing music in the hospital. So fast forward a few months from there, I played a few more times in the rec room, and then they asked me if I would go from room to room. And that felt really natural. No one was really doing that at the time. So they started a nonprofit in New York, and I was volunteer for that nonprofit as a musician, going to hospitals, playing from room to room, for 10 years in New York, and then I moved to Los Angeles, and 10 years in Los Angeles, but in that time, there were some young people who were interested in making music, and so one of them, a rapper, was trying to get his song recorded, and that’s what I did for a living. So I said, “Hey, I’ll record your song”. We did that. Had a CD release party. It was, unfortunately, he passed away a few months after we finished it, which was really hard. But what I realized, what this was, was one of the most powerful things he did in his life, and it was really awesome. And making music is really healing. Obviously, listening to music, as people know, is also awesome. And so I started to do that once in a while. So, a few months later, I got involved with a bunch of young people in Children’s Hospital at Montefiore. We made a CD with them. This is from 20 years ago now, and we had a CD release party, and we performed the song, and that was really awesome. So when I came to LA, one of the child life specialists at UCLA, heard about me doing that sort of thing, in addition to playing from room to room, and said, “Hey, you know we should do that here”. Then she went to work at Teen Cancer America, and she said, “We should do that here”. And then we started a pilot program about eight years ago, and with our first patient, who was a leukemia patient from San Diego County, and we started to do Skype, he started to come to the studio. We had about six or seven other people involved, all different cancer diagnoses, and then COVID happened, and so then we learned how to do it online. So now we have had over 70 young people through the program, and we have people from over 26 states, and 1000s of hours of writing songs and producing songs. So, I think there are probably a lot of questions to this, so I’ll try and answer them without trying to make it obvious what we do. But essentially, it’s treating young people who, AYAs -adolescent young adult cancer patients and survivors and treating them as their recording artists. And some of them are recording artists that have experience writing songs, singing, some of them have no experience and just love music. And so we indoctrinate them into: how do you write a song? How do you record a song? There’s obviously a lot of things that they have to do on their own at home, because they’re not coming to the studio in LA, if they’re not coming in here. But learning to record their vocal, sending it to me. And I’ll give you a quick example of someone who’s done that from outside of St Louis. I’ll show you how we did that but I’ll first show you the website, because I think that answers a lot of questions. So check this out. This is our website, and this is the Teen Cancer America website, and this is the Play it Back Music Program. You can see, this is early on. We had an event in my studio, and that was a live stream. There’s a video there. This is the numbers of what we’re at right now. I think we’re probably at a lot more. This is something: the Play it Back Experience. So this is really great for anyone who’s interested. Right now, we’re starting something where, originally, because of COVID, everyone was as you know, we all were stuck at home. We had something that we call Music Mondays. So everyone all across the country, we get together on Mondays and share music, do trivia contests, do songwriting games, things like that. We do breakout rooms, and now this has evolved into having this Play it Back Experience, which is people who aren’t in the program and they want to come and check it out. We’ll have special guests, we’ll have songwriting games, we’ll have trivia, and that’s starting on July 17. So if you’re interested in that, all you have to do is go to this website, which I guess I could take this and put this in the chat. Is that, okay? Does that make sense? I’ll do that. And this is the website right here.

Lauryn Cooney 6:45
I’ll also have a resource packet that’ll be available, and I’ll make sure I put that information in.

Kenley Mattis 6:52
Awesome. So, yeah, this is really exciting for us, and this is something that we really want everyone to know about. And if you’re at all interested in Play it Back in the least, just come on July 17, there are 30 spots, I think, so do it soon! But if you’re seeing this, hopefully you can get in on that. This is an album that we did. Somebody donated money for us to make a vinyl album. So we have 22 songs on this and these are all different artists who have songs on this album. And as I scroll down, you’ll see playback artists. Unfortunately, we have about, I don’t know, 50 people on the website, maybe a few more. And when I hit ‘Load More’, it wasn’t working this morning. But we have a lot of young people who’ve been through this program and who are still involved in the program, obviously. And if you click on it, you could see: this is Christina from North Carolina, and I could even play you a little bit of her song. Let’s see. It has a bio. Here it has a photo of her.

Christina (Singing) 7:48
It feels like, I guess it feels like, I guess it feels like grandma’s face/kissing young wave, dishes, making water/ The tunnels are so spread/Hey/ It feels like morning.

Kenley Mattis 8:40
So we did this a few years ago, I think by now Christina also has done some live performances with us, because she was in LA. We have some fundraisers that we’ve done, and we have some of the young people come and perform, which is really great. – And then this goes down to the Play it Back, homies. This is kind of a funny part of our program, because we have so many, especially during COVID, we have so many people in the music industry who have been involved in the program. I think, to clear things up, not everyone gets to work with everyone who’s on this list, but Benny Blanco is a great producer, and he’s a friend, and he has really been encouraging, and comes on calls sometimes, and he’ll listen to music sometimes, and so all these different people have been on either calls or have helped out collaborate. So there’s all different people in the music industry, and then as we go down, we have a podcast. And then this talks about, if you’d like to join, you could sign up here and volunteer as a producer. This is a photo from the studio. We used to go into hospitals again, but this is doing sessions in hospitals. And these are some photos. So I think this leaves some time for some questions, if anyone has questions, and if we don’t have questions, I can show you more under the hood as far as what a session might look like and how it might go.

Speaker 10:14
We don’t have any questions at the moment, but yeah, it would be good to see maybe how it how a session would go. This is such a cool experience. I am not musically inclined, but I can imagine for anyone that is, what an amazing experience to be able to professionally record your own song. I just think that’s really an amazing offering.

Kenley Mattis 10:38
Yeah, yeah. It’s one of those things where I think most musicians realize how much music helps us all, and then to teach somebody what we do and under the hood, and try to get them to get something that — they listen to things, — and to get them into that world of making something that now they listen to. So yeah, so I’ll show you quickly, how this works. It’s always a little bit different, right? Because some people, maybe they write poems and they want to make it into a song, or maybe they, you know, sing melodies and they want to make it into a song, or maybe they just learn to play guitar and they want to make a song. So there’s different skill sets and different ways that people go about making a record, basically, right? It’s not just a song, we start with the song, and then we make a recording, and we build it into something that you’d want to listen to over and over again, right? We take our time doing it. In many cases it can take, four or five, six sessions just to polish off one song, and then sometimes other songs might come up, and so this sort of thing. So we have some artists who have been working and Play it Back for, five, six years even. But then there are people who come through and they’ll do a few songs and they’ll move on. Maybe they have to go to college, or maybe they get a job and they don’t have time to do sessions anymore. It really does depend, but I’m gonna show you what –.

Speaker 11:59
I have one question while you’re setting that up, do you also offer experiences for people who may not be a musician, so they’re interested in the how-to of producing?

Kenley Mattis 12:10
Yeah, this is a really good question. I think that the the new program that we’re starting, called The Play it Back Experience, is really great for that because you don’t need to write, you don’t need to sing, you don’t need to obviously, play anything. There are plenty of artists that don’t play instruments. But with this, yeah, you’ll get to see under the hood of what it’s like to write a song, some of the ideas that we go through to teach young people to put together music and songs and this sort of thing, and how it’s done. So yeah, I think July 17 is a great way to to check it out. And the other thing about The Playback Experience is that people can come back month after month, as long as there’s space. That’s definitely an experience for that. And I think you’d be surprised, because if you like to sing at all, you probably can do this, and even if you don’t, there’s ways of of making music that I think probably people don’t even realize. There are some artists that are into DJing and remixing music, and that’s something that we also help with and do. So really cool software, things that we do that are really user friendly and easy to use. I’ll show you something that’s maybe not as user friendly, but that I do with people, and you can get an idea of looking under the hood. So I’m going to show you something called Logic Pro, which is software that we use to make music. And there’s all different things. We call them DAWs, or digital audio workstations. So this is what a version of Logic is… actually I have an old setup, because I have lots of cool software that only works in this setup. So this is kind of a little bit of an older version of the software. But if you look at these blobs and all this, I can zoom in and show you. So down here the pink and the blue, this is a vocal that was sent in from someone in Missouri, which this particular one wasn’t recorded on his phone. But we have released music that people have recorded into their phones on Spotify. That’s how good the new the microphones and some of the phones are now, and then all these other blobs or things that I’ve done, these are drums. And so I could play a little bit of this, I have a little bit of time left, and give you an idea of a different kind of song and something that… — this hasn’t been released yet, but these are all different on the left, these are all different instruments, and they go along this timeline from left to right. And as I hit play, you’ll see this playhead go over these things. It’s funny to try and explain it like no one’s ever seen this before. I gather some people have seen these sorts of things, but you’ll hear other instruments come in, and by the time we get over here, this is where most of the instruments come in. So I’ll play about a minute of this, if that’s okay. It’s just, to give you an idea. This song is called The Red Tree. It’s by Dominic Elias, who’s from Republic, Missouri via Indiana, and he’s got a really cool voice, and he’s 19 years old. He’s a brain cancer survivor, and he loves music, and hadn’t really ever written songs before, and now he just pops up with lyrics and we put stuff together. He might be singing me a line or two. I have my guitar, I’ll kind of figure out what the chords are, and we’ll go from there. But everyone’s process is a little bit different so, but this is The Red Tree.

Dominic Elias (Singing) 15:46
I dream, walking out the door, silent scream, face flat on the floor./Why did I have to dream about you and me again? And again and again and again/daylight, I’m punching the air/ bad fight. I need to be scared. Why do I have to regret missing you again and again?/Sometimes I think about you and I/underneath the gorgeous paradise where we believe and they believe was before I had to leave,/we never understood each other for so to fight for one another, and I know you finally feel free, but I miss you and me/up to the red tree./

Kenley Mattis 17:13
So we do all different styles. We have hip hop artists, we have country artists, we have electronic music artists. We’ve even had somebody do like anime music. So, we have access to producers from all over the country that can help us add tracks to things. In this particular production, I played everything, which is kind of what I grew up doing. But, we have different people all over the country helping us out with this. So anyway, that’s just an example of what… –And he put that vocal together at home. We worked on the first part just acoustically via zoom, and then after a few sessions, we have this. So that’s what we do.

Lauryn Cooney 17:54
I love that, and I love how flexible it is, that they can work on it from anywhere. So I really appreciate you sharing that with us, and I know you have to pop off, but I will let you know when we have the recording finished. Oh, I think we have one question, how much time does an average patient spend with your team?

Kenley Mattis 18:16
It really depends. I would say this is something that we’re discovering, that it’s become an ongoing thing, because people really love music. They love making songs. And so it’s like, “I have another song, I have another song”. So, and that’s why we’re growing and we’re getting more producers to help out. But I would say that the sessions, this is a good question, because sessions are usually 90 minutes long. So if somebody wants to do the program, and, between 60 and 90 minutes. Obviously, there are some cases where someone might be going through treatment and they’re not feeling great, and so maybe they only feel up to doing 45 minutes or whatever. But generally, we schedule people in advance for 90 minute sessions. We’ll work on creating a song, an idea, talking about, obviously, how to write a song, if that’s where they’re at. And then it could be anywhere from three to six sessions where we go from nothing to pretty much a finished song, and finished recording even. And sometimes it takes more than that. Sometimes it takes less than that. It really does depend. And also, if people are really into music and they have more than one song, but if it’s just somebody who’s like, “I’d like to do one song”, which rarely happens, actually, because what happens is people start, they’re like, “You know, this is really great. Let’s do more”. And then it just depends on availability. But I don’t know if that answers the question, yeah,

Lauryn Cooney 19:34
I think that does, so good. Thank you. Thanks so much, of course, and I appreciate you being here!

Kenley Mattis 19:41
Yeah, thanks so much for having me. But I have a 13 year old daughter that I have to send off to camp, so I gotta —

Lauryn Cooney 19:46
No worries, no worries.

Kenley Mattis 19:49
It’s 8:25, in LA right now. So we’re getting our morning going.

Lauryn Cooney 19:52
All right, our next speaker, if she doesn’t mind, Mallory Casperson with Cactus Cancer Society.

Lauryn Cooney 20:09
Almost. I apologize for the earliness for everybody that’s on the west coast. Next time, I will think a little bit more about making it later in the day.

Mallory Casperson 20:20
Okay, can everyone see my slides? Okay, so I’m Mallory Casperson. I’m the CEO at an organization called Cactus Cancer Society. We’re a non profit organization. We offer online support programs specifically to young adult cancer patients, survivors and caregivers. I’m a two time cancer survivor and also very fortunate to have served as one of the primary caregivers to my mother during her cancer experience. We’re a small and nimble team of three full-time employees, two part time program coordinators, and we’re actually in the hiring process right now for a fourth full time person, which is exciting. Sort of by accident, the whole team is made up of survivors. A few of us have also been caregivers, and we live absolutely all over the country, so we pride ourselves on really understanding what it is that other young adults facing cancer are going through, and how best to get these survivors and caregivers connected and engaged in online programming. And I know that this is an early onset resource fair, so there’s a lot of overlap between young adult, which is 18 to 39 – we actually push it to 45 years old, and the early onset community. So I’m going to keep using young adult, because that’s just the terminology that we use. But early onset, we see ya! We also have a number of contractors who run a variety of programs who have lots of those important letters after their names, depending on what they’re doing with us. And actually, this list isn’t exhaustive. We’ve added a couple more people in the last couple of months. So when I was first diagnosed in 2011, I was 24 years old, and it took me two and a half years to meet another young survivor. She lived in Australia, and we chatted on Skype, and talking to her was life changing. I ended up spending the next year really talking with hundreds of young survivors all over the world, and through these conversations, I learned that really, regardless of diagnosis and where someone was treated, young adult cancer survivors really wanted connection to one another. They wanted concerns to be validated, and they wanted a safe space to process what has happened to them. They’re often not getting connected to one another organically in the clinic setting, and so figuring out another way just became really important. I founded the organization, and we gained our nonprofit status in 2015 so we actually just celebrated our 10 years, which is really exciting. We started as a blog, really as a way for me to connect with other young survivors. I found friends, and friends of friends, to write everything young adult cancer and lifestyle related. This was really at the height of lifestyle blogs and RSS feeds on your phone. People wrote articles about infertility and dressing in layers at chemo and dating and DIY projects and exercising through cancer and working through cancer, and really everything else. And so we started focusing on all these different lifestyle aspects of having cancer as a young adult, whether that person was a patient, a survivor or a caregiver or a previvor, really, for that matter. Sometimes healthcare providers and family and friends would use the site to figure out how best to support those young adults, and those those other support individuals who are along for the ride when we think of a young adult going through cancer. But after getting our nonprofit we just really slowly started growing programs very organically, listening to the young adults who are in them, and figuring out how best to deliver, how best to run them, and what programs were really moving the needle on those quality of life burdens that we see so frequently in the young adult cancer experience. So now we have over 20 programs running, all geared towards young adults facing cancer, any diagnosis, any stage along the experience. I will say, spoiler alert, every once in a while, we do run diagnosis specific programs, and we are talking with a funder right now about running a colorectal cancer program. So if you’re interested at all, sign up for our program list, which I’ll talk about in a second. All of our programs are online. It really makes them as accessible as possible regardless of where you’re located, whether you’re living at home or you’re inpatient in the hospital, whether you live nearby a hospital resource center or not. And all of our programs really work hard to provide that safe space where young adults facing cancer can connect and cope and thrive with one another through creativity and expression. Our programs have been online way before COVID, so we’ve really honed in on that online program delivery. They happen through video chat, and so they happen at scheduled days and times, and they give survivors that chance to be face to face with other people who really understand what it is to go through cancer as a young adult without having to leave their homes. All the programs are free of charge, and because they’re online, we really welcome a really diverse group of young adult cancer patients, survivors and caregivers. So really, any way that you can talk about diversity, we have it in our programs. Our program participants come from geographically diverse environments. Sometimes they’re rural and they live too far from a major cancer center to receive similar survivorship support. We see a lot, a large spectrum of people in the LGBTQ community, a lot of different racial and ethnic identities in our program, so lots of different experiences, which means that coming to programs, you can find someone who looks like you and sounds like you and has overlaps in what they went through. We run journaling workshops and art workshops. An example of the flow is that people sign up for a specific activity, and we mail them a physical supply box and then they attend at the day and time to participate. We have so many programs running, though, so there’s really something for everybody, goal setting, workshops. We have a book club, although it is a different take on a book club. We have a program with Dr. Anne Katz who answers anonymous questions on sex and relationships. We have Lego workshops and creative writing and a guys’ discussion group that happens once a month that is very a closed environment for guys. It’s run by a social worker who is a guy, and it’s a great group of people who tend to come every month. We have four to six week programs. One of them is called, Story Mapping, where people learn to combine storytelling with this like great graphic representation to map their cancer experience. We have other programs, a creative coping series and a survivorship series, where this group of participants go through the same series of creative workshops together, and that’s just really a sampling. We have things running absolutely all the time. We do tend to take a program break in July so things are a little quiet as we get into the beginning of summer, but then they they ramp very quickly back up again. Signing up for programs is really easy. You just head on to our program, to our website, cactuscancer.org, when I’m done talking, I’ll drop a link in the chat. You choose the program that you’re interested in. This is Story Mapping, as an example. If there’s a session of that program that’s upcoming, then you can pick it. You sign up by just following the button that says, ‘sign up here’. And if you’re wanting to just hear more about the program and know when it’s next announced, you can click on the sign up for email notifications button that you can find on a number of program pages, and that takes you to our email list. Sign up so you give us a little bit info about yourself, and then actually choose which types of programs you’re interested in. Having notifications about – our programs fill up quickly, so sometimes they fill within an hour of being announced. So being on the email list to be notified when any of the registrations launch is really the best way to hear about things in time to sign up. I will say, if you’re having trouble getting into programs because they fill before you get a chance, just send us an email. We’ll often help you, sort of sneak into the next thing that we’re offering. I think there are really several things that make our programs at Cactus Cancer Society unique. One of them is that we run programs online and really continually throughout the year. So there’s always something fun to sign up for, and there’s always a variety of programs that you could try. Another thing is that we continually evaluate our programs using validated measures and more informal ones in anonymous pre and post program surveys. So if you’re only on the program participant side of things and not interested in this type of information, that’s great. And if anyone else wants to see some of the impact measures really quantitatively offered, this is how we do it. We’ve published a number of abstracts at conferences over the last few years that really demonstrate the effectiveness of running psychosocial interventions online this way, and really concretely show that our online programs lower participants feelings of anxiety and depression and psychological distress and some of those other quality of life burdens that are really inherent in this young adult cancer experience. So it means that hopefully, someone comes to a program, and not only do they get to participate in this really fun creative activity, but they also they feel better. They leave with a community that they can feel supported by and validated by, and they have these creative coping strategies that are very tangible, that they can take with them. Whether it’s in the evenings when they’re relaxing after work or in the waiting room of a doctor’s visit, or really anywhere in between. I’m an engineer by training, and so I love data. It’s been very important to us to have continual data on our programs, really all along, to make sure that we’re filling the needs that we think we are, and we’re doing it in the best way possible. And that’s it. This is my contact information. I’d love to hear from you. Take any questions we have now, or later on, if you’re seeing this recorded and you you have a question about something, please feel free to send me a shout out.

Lauryn Cooney 31:35
Yeah. So we do have a couple questions. I just wanted to say on a personal note for anybody, I have done a few of the Cactus Cancer workshops, and especially when I was first diagnosed, it just like you said, I felt less isolated, and I just left feeling like there was a community for me, and it’s not all cancer chatter, it was so refreshing. I think the first meeting I went to we just talked about our favorite Netflix movies or shows or what we were binging. And so it doesn’t have to be this scary, “Oh, I gotta talk about my cancer diagnosis again”, but I just wanted to say that, and we did have a few questions. So we had interest in your job posting. If that is still active.

Mallory Casperson 32:26
I’m so sorry it is not. Yeah, we’re in the interview processes, but we do periodically grow the team. Fingers crossed.

Speaker 32:36
Okay, so we’ll just have the person keep looking. And then the next question was, do you have participants go through an application process with doctors, verification, etc? That was the question.

Mallory Casperson 32:54
It’s a great question. We don’t. Programs tend to be pretty closed to survivors and caregivers. We use patient and survivor very synonymously. So in case that’s a question that’s lurking unconsciously in someone’s mind, we ask enough questions that — I’m not sure we worry about fraud very often in in programs. We also have a program at the end of the year every year that’s a week long survivorship conference that we partner with another organization, Elephants and Tea, and the program is called YA Cancer Gab Fest. It’s very fun. It’s in the evenings, it’s all online. And so that’s a place where, really, anyone can join us. But otherwise, yeah, when you have 15 people in a program, it’s pretty easy to tell that everyone is actually living the experience that they’re describing. And like Lauren said, there’s a lot of non-cancer chatter as well. So from that perspective, it’s really easy to sign up for programs. You just need to tell us a little bit about yourself and and we’ll get you.

Lauryn Cooney 34:00
All right, thank you. That was wonderful. I don’t think we have any other questions. So I think we will move to Susan with the Dear Jack Foundation.

Susan Wandishin 34:12
Hello. Thank you guys for having me. It’s good to see some of you that I’ve met before. So let me share my screen real quick, and then I will go through what we do at Dear Jack and our programs. Dear Jack was started by this awesome human in 2006. He had cancer at the age of 23. His name is Andrew McMahon. He’s a singer-songwriter. He’s actually still on tour. He’s playing Red Rocks next month, so super stoked about that. When he got into the survivorship stage of his journey, he really started to try and process the things that had happened, and realized there really wasn’t much out there for young adults. So in the beginning, he did concerts and donated money back to other cancer organizations, but we started our own programming a little over eight years ago, and we have three main programs that go from diagnosis to survivorship. We specifically work with the young adult population, so 18 to 39. Our three main programs: our Life List is our first one. Life List is a wish granting program, and when you get in the program, you’re in it for six months. During that time, you have a budget of up to $1,500 to spend on something that’s going to bring you joy. The the main thing is, we don’t do is we don’t pay bills. We don’t do generic gift cards like Visa, Amazon. Other than that, there really aren’t a lot of rules with this program in terms of what you can and can’t wish for. We do a lot of trips. Somebody just sent me pictures this morning from Japan. It’s so exciting. But we do buy a lot of smartphones, different technology things. But we are open to things like, ‘I want to meet the Kansas Jayhawks head coach, Bill Self; I want to go to Vegas for a UFC experience’, anything like that. I always promise I will try. I do not know Beyonce or Taylor Swift. So while you may wish for those, I probably cannot do those, because I’ve tried. But we are willing to try for anything. So that program takes applications quarterly. It has a two-phase application process in full disclosure. That program really gets two to three times as many applicants as it can serve every quarter. So what happens is we open applications for one week, which actually is happening right now, and anybody can apply. It’s a shortened version of the application. It’s just some demographic information and then a little bit about your cancer story and your current treatment plan. We will close that next Thursday, and then we will do a randomized selection from there and invite those people that are selected to move forward in the process. And then you have a few days to fill out a long form application. And then we do an interview, which is very casual. It’s hanging out with me and like chitchatting for a while about your wish. And then you’re in the program for six months. We work even if your wish is like, I want a phone, and we finish your wish in the first couple of weeks. You’re still in the program for six months, and we work to support you in other ways. We have a social worker on staff, and she stays in contact. She is a young adult survivor herself, so we just kind of like to wrap our arms around our participants for that six month time frame. We also have a community initiative. This has two parts. The first part is that we do two virtual get-togethers a month. There are other organizations like Cactus Cancer, like Elephants and Tea that really are standing up the psychosocial support for AYA. So our calls tend to skew a little more psycho- educational. And if there’s a topic and an AYA wants to learn more about or to be supported with, we work to find somebody. Our next three calls are we have a nutritionist coming on Monday, she is a YA survivor. She is going to talk about how to shop at a farmers market, and then talk about summer smoothie recipes, and then after that, we have a psychologist coming to speak about how to manage social media. The comparison issue is such a big deal for every young adult, but even more difficult for those in treatment. So she’ll be talking about that. And then after that, we have a professor from Colorado State University coming to talk about photo storytelling and how you can use that as a form of expression. So that’s the first part. We have two calls a month. The other part is that we have a section of our website. We call it our Community Forum, not the best name, not super exciting, but it is what it is. But it’s free to any AYA. You just have to register. Once you’re in, you can see all of our upcoming calls and link to register right from there, there are links to our Facebook and our Discord groups that you can join. But the real meat of it, we don’t record our calls because, of course, we want them to be safe space, but we take the slide decks and the notes from every call, and we’re building them into a database. That’s what this little screenshot is of. You can go out there, and it’s categorized. All that information is out there and will always be there. The beautiful thing about our community programming is there is no max on the programming so anybody can apply, and there are no application cycles. So at any point in time, you can join in. You can come to calls that interest you, and if they don’t interest you, you just you don’t come. You can come to all of them just to be in that safe space. And then our third program is called Breathe Now. These are retreats for survivors who are minimum, around a year from active treatment. If somebody is metastatic diagnosis or longer term treatment plan, that’s always something that we can discuss, because that’s just a different ball game. But these retreats, there’s two different versions of them. One is that we do four day retreats for couples, one of whom is a survivor, the other is their significant other that was with them all the way through. During those retreats, we do yoga, we do mindfulness, we do breath work, but we also have sessions with a social worker or a counselor that we really help the survivors and their caregivers process what they’ve been through, and open the lines of communication so that they’re in more of a balance going into survivorship. We’re also starting two day versions of these retreats for individuals. So we had a lot of requests over the years of I’m not in a couple, but I still really want this kind of psychosocial processing to happen and the support. So we are starting those. We have one next weekend in North Carolina, but there will be another one. That one’s closed to applications, but there will be another one happening in Philly in October/November through – we got a grant from the Flyers, so there we’re handcuffed right now waiting for the NHL to release their schedule before we can schedule that, because we are hoping to do it with their Hockey Fights Cancer night, so there will be a game involved in that retreat. So that should be fun, but we do have applications currently open for two of our couples retreats. One is in September in Colorado, and the other is in October in West Lafayette, Indiana, which is not the hotbed of places that people are signing up to go, but it is driving distance from so many different places in the Midwest, so that’s why we picked it. It’s actually at a darling, little inn and we have the whole place to ourselves. So “plug” there. It will be awesome. So those are our three programs at a very brief, fast level. That is my email. You can always email me any questions you have, and that QR code goes to our programs overview page, where you can access any information about any of our programs. Any questions?

Lauryn Cooney 42:34
I don’t see any questions at the moment, but I know a number of our COLONTOWN members have participated, and I love when I see them pop up in your Facebook or your Instagram feed. So I hope we see some more.

Lauryn Cooney 42:52
So I hope we see some more townies popping up and taking advantage of your programs because they’re great.

Susan Wandishin 43:02
Thank you.

Lauryn Cooney 43:02
You’re welcome.

Susan Wandishin 43:04
Thanks for having me.

Lauryn Cooney 43:06
There’s no other questions. If there’s no other questions, we will move to Jenny with the Expect Miracles Foundation. All right. Thank you, Susan.

Jenny Sheridan 43:27
All right, as Lauren mentioned, I am Jenny Sheridan. I am the Director of Programs at Expect Miracles Foundation, and I’m going to talk to you today a little bit about our SAMFund grant program. A little bit about Expect Miracles Foundation: The mission of Expect Miracles is to invest in lifesaving cancer research while advancing the financial and emotional health of people impacted by cancer. The organization was founded in 1995 and it began as a golf tournament our founder had after serving as a caregiver for his mom as she went through cancer, to raise funds for Dana Farber in Boston. Over the last 30 years, the organization has expanded and now supports three funds. We have a Discovery Fund at Dana Farber, the Innovation Fund at Memorial Sloan Kettering, and the SAMFunds that I am going to speak to you about today. Over the past 30 years, the organization has awarded over $21 million in grants to these three funds. So the SAMFund stands for Surviving and Moving Forward, and we provide financial assistance grants that are intended to provide a bridge to help applicants get back on track to where they were before they were diagnosed with cancer. It was originally founded as a separate non-profit called the SAMFund, and was founded in 2005 by Samantha Watson, who as a two-time survivor recognized the limited financial resources that are available to young adults after treatment ends. In 2019 SAMFund integrated with Expect Miracles Foundation and became a program of the organization. And since the founding, over 2700 grants totaling over $4.6 million have been awarded to young adults. We award financial assistance grants in two categories. One is just general financial assistance for living expenses, and the other, which was started in 2020 after receiving a lot of applications, is family building, so, for family building expenses for young adults following their treatment. We have two application cycles per year. They’re separate applications for each of those two types of grants. We have one in the spring and one in the fall, I would say more late winter and late summer. But funding happens in the spring and fall. The applications are online and they’re open for approximately four weeks. Young adults can receive up to two grants in their lifetime. It can be both financial assistance. It could be two family building. It could be one of each, and we make payments to third parties, so we’re not making grants directly to survivors. But two could be a bank, it could be their landlord, medical clinics, universities, whatever it is that they apply for. The eligibility criteria, applicants must be a resident of the United States. We have awarded grants to recipients in every state in the country. So it is not geographically defined. They need to be 21 to 39 at the time of application, and we ask that applicants wait a year before applying again if they received a grant. So if you receive a grant in the spring, we ask that you not apply in the fall, but you could be eligible to apply the following spring. So there’s just one grant cycle in between your applications. As I mentioned, you can’t receive more than two grants in a lifetime. You can’t be tax dependent in the most recent years tax filing, and then, similar to what Susan was talking about, you have to meet one of the following medical criteria: Completed active treatment one year following planned treatment with stable disease or partial response; Or for those that are on long term therapy, immunotherapy, molecular therapy like Gleevec, long term hormonal therapy, we recognize now and these are always changing. We have medical advisors that help us with these, because treatment is changing so much. If you have any questions about your eligibility, you can reach out to us. But again, like I said, we’re always modifying these to meet current treatment standards. So the two types of grants, the first one, the Financial Assistance Grant, generally opens in late January and late July. Our next cycle is getting ready to open on July 29 and will close August 20. You can ask for payments for car rent or mortgage, graduate tuition, continuing ed or vocational training. We provide grants for cosmetic, dental or reconstructive procedures related to cancer, and then egg embryo or sperm storage. And the maximums vary for each of these, for car payments and rent and mortgage supplementation, we can make currently make up to three months of payments. We’re hoping to grow that, we’re also working on growing our maximum amounts and our average amounts for financial assistance. Currently, the average grant amount is around $2200 although the ranges vary up to the maximum of $4,000 and then for Family Building grants, those dates are usually midMarch and mid-September. The maximum request for all categories is $5,000 for Family Building expenses, given the very, very high expense of family building procedures so this can cover fertility preservation, any services for IVF or IUI, gestational carrier, surrogacy fees, testing for fertility and adoption. So how to apply for a grant during an open-grant cycle, we have an online application. The first section is an eligibility determination. So really, just based on the criteria that I walked through, if you’re eligible, there’s a grant request form, so you complete the category, how much you’re requesting and who the payee would be for our financial assistance grants. We ask for a primary request and a backup request. In really exceptional categories where there’s demonstrated need and a strong connection to their cancer treatment, we may provide funding for both categories, but generally speaking, it’s the primary request. You give some information about your finances, your family’s finances, and then some short answer questions about how your financial situation was impacted by your cancer experience. We do ask that you have a medical history verification form completed by a healthcare practitioner just confirming your diagnosis and your treatment dates, and that your current treatment status fits with the eligibility criteria, and then tax information. So you would upload the first two pages of your tax returns from the prior two years. If you haven’t filed taxes, which is the case for many people who haven’t been able to work and don’t meet income standards, you can complete an affidavit that we have online, you sign and explain why you didn’t file taxes. We have a lot of students that are coming off their parents taxes, so there’s a lot of different situations. There is an affidavit available if you haven’t filed taxes. And then for more information about the program, you can visit our Get Help page. There’s more detailed information about eligibility for the two programs, and you can sign up to receive emails about SAMFund grants or news when the grant application is opening. We would send an email, and other information about the grants. We do have a resource guide that my coworker built. It is an extensive list of other financial assistance resources, and it’s designated by geographic region, age diagnosis, and also includes other medical and non-medical assistance that may be available to patients and survivors of all ages. We get a lot of inquiries for people that don’t fit our age range, so we try and provide other opportunities for them to find support, if we may not be able to offer it. And then we have a quick fact sheet that can be downloaded, printed, handed out that just gives an overview of our grant program for some of my co presenters that could be available to share with some of your community, or for others that may be eligible to apply. It’s just a quick overview of the program, and there’s my contact information if you want to reach out to me directly, and I will take any questions. If there are any?

Lauryn Cooney 52:43
I’m going to see if any questions pop up. Oh, is there a link to the mailing list for SAMFund?

Jenny Sheridan 52:52
Yep, I’ll drop that in the chat.

Lauryn Cooney 52:55
Okay, perfect. I know that there’s not, or it feels like there’s not a lot of grants of this type for our age group. So this is really helpful and really great. And I know we get a lot of questions about fertility preservation, so the fact that you have that is wonderful as well. I think that was our only question. So if that’s it, we can move to Kate with Do it For the Love and thank you for presenting, Jenny, I really appreciate it.

Kate Adornetto 53:32
Can you hear me? Okay, awesome. All right. Well, thank you so much. My name is Kate Adornetto. I’m with Do it or the Love. I’m super happy to be here with all of these wonderful copresenters and all that you are doing for the community. So just really excited to be here. I’m going to share my screen, and hopefully have no issues, with the entire screen all right, and then I’m going to go into present mode. So just one second please, okay, can everybody see my screen? All right, fantastic. So I’m the Executive Director of Do it For the Love. We were founded in 2013 by Michael and Sarah Franti. Michael Franti is a musician and Sarah Franti was a registered nurse, and so the two of them had the opportunity to grant a live music experience to a fan of Michael Franti’s. And after the experience, they went back and talked to one another about founding Do it For the Love as an opportunity to provide more live music wishes to provide that hope, that healing through live music. So just super excited to be working in this nonprofit, and doing the work alongside each of you again, and providing musical experiences to those in need. Our mission is to again inspire hope and healing through the power of music. We support clinical and community based music therapy, evidence based research, and we provide live music experiences. The number one thing that we do is we let you tell us your wish for your experience. And you’ll see in the photo here, this recipient’s wish was to actually see Wicked in New York City. So she got to go with her two daughters and had a wonderful time, but it was a predominantly musical theater experience. So we do say anything that has music we’ll grant your wish. So it’s a wonderful, wonderful thing. So how to experience a life changing live music concert: We have two different ways. A lot of times, you can apply for the wish yourself, and you can apply online at the website, and it’s a simple application that you put in there. Tell us your story and let us know – we do ask that you are with a terminal diagnosis and or severely challenged or a wounded veteran, those are our criteria. The other way is to be nominated for a wish. A lot of times it could be your mom, a best friend, a spouse. You know, anybody: your physician, anybody who wants to nominate you for the wish. That is the other way for applications, because sometimes you’re just not feeling well enough to do it for yourself. And so we do have that space as well for people to nominate you and fill the application out on behalf of you, which is a wonderful thing. And so really, when you’re applying for a wish, or you’re nominated for a wish, like I said, you’re putting in your top three. Do you want to see Imagine Dragons first, and then John Legend, or John Legend first, or Imagine Dragons second. You get to decide what your top wish experience is. And then we ask, what your second wish is. Just in case there aren’t tickets, maybe they’re not touring. It could be a variety of things. We just had somebody who wanted to see Billy Joel, and then I think he broke his finger. And so we had to push it back to the fall, or change their wish to a different live music experience. So anyways, back to applying for the wish, or being nominated for the wish you put in your wish, it could be any time during your diagnosis or during the situation that you’re in, and then we work with you to grant your wish. We get you tickets. And the cool thing about Michael Franti being a musician in that realm, is that we often are able to grant meet and greets. We’re often able to get VIP access, and we’re often able to have just a different experience for a lot of our wish recipients. It’s not guaranteed. I think you said the Taylor Swift one. I’m right there with you, Taylor Swift. It’s just not happening for us right now, but if it does happen, we would definitely be so thankful. So if we can buy tickets to Taylor Swift, but only two, not anything more than that, because they are just so expensive. We often will buy two to four tickets, depending on the price. And the other thing too is that we will give a stipend. So if you need to Uber, you need a hotel room, we’ll give a stipend of up to $500 to reimburse you for those personal expenses. On top of us purchasing your tickets and hopefully providing you with a really great experience to see the live music artist that is your wish, and also to bring you a night away from all that you’re dealing with, to bring you that joy, to bring you that healing moment, to create memorable experiences with the people that you get to bring with you. So let’s go to our impact. Last year COVID was big for us. We were granting so many wishes before COVID. COVID was big for us because we couldn’t send anybody to live music concerts. We’re coming out of COVID, and we’re creeping back up to serving a lot more. So last year, we granted 134 wishes. We’re already going to surpass that by the end of the summer. Our application is usually open year round, so we’re taking applications just about any time of the year online. We have program coordinators who are reviewing them. If you applied today, but your concert’s not till August, it could take a little bit more time for us to get back to you. But once your application is in and you meet the criteria, we really don’t turn anybody away. We’ve granted 134 wishes last year, but we sent 494 people to a concert, which is really great. We’ll be on track this year again, probably to reach around 175 live music concerts, and surpassing that impact. So we’re getting back to our pre COVID numbers, and we’re really, really just thrilled and excited about that. I want to talk to you quickly about Zephyr, the young individual in the photo who actually just went to our Red Rock Show for Michael Franti, and that’s me. I was really, really happy that I got to go to Red Rocks and help grant his wish of meeting our founder, who is Michael Franti, and we got to go backstage, and he brought him a gift. And the whole night was just so wonderful and magical. Being there with him and seeing the joy and hearing his mom give us the next day recap of how Zephyr felt after his night out and his experience. It was so joyful. He ended up bringing his twin sister with him, as well as his mom and dad. That is a picture with his dad, and they had the best time ever, and it just his first musical experience, his first concert. So oftentimes we get to grant first concerts. We get to grant concerts with loved ones, and we get to make that memorable, and that that night of hope and healing and joy for you as the recipient, will be something really special. So this is my contact information. Feel free to reach out to me. Everything is on our website, so just go to doitforthelove.org and you can learn more about our frequently asked questions. You can apply and or nominate there. You can spread the word about what we’re doing and let people know about what we’re doing as well. You can watch our wish stories and do all the things there. We are fully remote. I’m actually coming to you from Iceland today, but we are fully remote, and we operate out of Oakland, California. We have our big annual gala in San Francisco, and we do a lot of things in the San Fran community, and support a lot of music therapy programs there. And so if you have any questions, please reach out, and I hope that you apply and get to have your live music wish.

Lauryn Cooney 1:01:50
I love that you also include musical theater and different forms of music, because I wouldn’t have thought about doing that. We do have a few questions. The first one was, what was the most outrageous wish that you were able to secure and grant? So maybe not Taylor Swift…

Kate Adornetto 1:02:11
Well, we’ve granted Taylor Swift. We purchased tickets to Taylor Swift. We’re unable to get the meet and greets with Taylor Swift, but we do our best to get you tickets and get you there. Outrageous….that’s a great question. I have to say, probably one of my favorites is we had a an adolescent who wanted to see KISS, and he painted his face and matched them and had a meet and greet. And it was just so cool to see the photos of him with KISS and all they were all painted. I mean, it was just a lot of fun. Sometimes our wish recipients want to show up in a limo or do something really fun like that, which can be fun and outrageous, to feel like a celebrity for a day and have that meet and greet and be with your favorite musical artists. But great questions.

Lauryn Cooney 1:03:09
That’s really fun. The other question was, I am a stage four in active treatment, and obviously life threatened, but no one has used the word terminal. Would I be eligible? Or should I save your time? Oh, wait, yeah, I don’t want to say that part, but you know, are they eligible?

Kate Adornetto 1:03:24
Yes. We look at it from anybody who’s been actively with a diagnosis of something that is life threatening, terminal, then yes, you please apply. Absolutely. We’d love to send you to your concert.

Lauryn Cooney 1:03:42
And then the other question is, is Puerto Rico included in the US, and Canada?

Kate Adornetto 1:03:47
So yeah, actually, we don’t. We don’t always say it on our website, but we will send you to a concert anywhere in the world. So New Zealand, Australia, Canada, yeah. We have granted wishes for people all over. And we’ve done work with musicians all over. So yeah, Puerto Rico, if there’s somebody there that you really want to see, put your application in.

Lauryn Cooney 1:04:11
That’s fun. I think that’s our questions. And so if there’s no more questions, we will move to Lacey last but not least with Wish Upon a Wedding.

Lacey Wicksall 1:04:24
Hi everyone. Thanks so much for having us. I’ve known about this support group for a super long time, and have had the privilege of meeting a lot of people involved in this group. And I’m so thankful for the resource that you’re providing to so many people, and I have loved getting to hear from all of these other amazing organizations. I am the Executive Director of Wish Upon a Wedding. I’m going to share my screen here and show you guys just, let’s show this one. Wait. How do I show my whole screen? All right, is everyone? Oh, dear, we got this. Okay, great, okay, …Wish Upon a Wedding. We are a nonprofit that exists to grant weddings and vow renewals to couples that are facing terminal illnesses or what we would deem to be a life altering health circumstance, much like some of these other organizations that those terms are a little bit fluid. So we were founded in 2010 when a wedding planner in the Bay Area had an idea to give away a wedding for free, and she kind of put a call to action out across the country, she had all these people apply, and one couple that applied, one member had a terminal cancer diagnosis, and she just thought they were so incredibly deserving. She organized all of her wedding planner friends around this. A bunch of people donated, and the idea was born, and she just kind of set sail with that. After this weekend, we will have granted 323 wishes. I think wish number 322, and 323, are this weekend. I’ve been a part of the organization for seven years. I ran our program as the program coordinator for five years before becoming the executive director. We are also an incredibly small, nimble team. It’s myself as a full time E.D. and then we have a full time program coordinator and a part time fundraising director. We all work remotely. I live in Columbus, Ohio, and our wish coordinator is in Houston, and our fundraising person is in Chicago. And then we have a board of directors that sits nationwide. What we do is micro weddings. Essentially, couples apply through our website. It’s a super easy application process. We have people tell us about their love story, how they met, their diagnosis, the challenges that they’re facing, and if they have indicated on that application a couple of checked boxes, then we reach out to them, and we do an interview. Myself and my program coordinator do all the interviews together, and there’s just a really sweet time of getting to know people. We get to learn about how and when they fell in love and what their family looks like. And then we get to talk about their illness and how they discovered their illness. And it’s incredibly cathartic for people to speak about that journey. And people love to be heard, and it’s really important that we understand that journey. And then we talk about their motivations for why do you want to get married? Why do you want to renew your vows? We grant wishes for people of all ages. I have been astounded by the amount of young applicants that we have had in the past few years. I think the numbers are just increasingly climbing. I lost my dad to terminal cancer six years ago. I lost my best friend to terminal colorectal cancer this year. I’m very familiar with what an incredibly hard journey it is. And when we were going through my dad’s very short cancer journey, the amount of people that showed up, I really appreciated that first presenter, we had someone knock on his hospital door one day and wheel a harp in and play the harp for my dad for 30 minutes. They didn’t know us. They had never met us. And I know that sounds like such a tiny, small gift, but I have thought about it 1000 times. My dad loved music. She didn’t know that about my dad, but he loved music, and he opened his eyes and just a look on his face, and that’s all we want to do. We just want to show up in the midst of someone’s incredibly dark journey and shine a light. So once we interview our applicants, we go into a paperwork phase. We verify diagnosis and prognosis with a doctor, we background check people, and then, once they’re approved, wherever they’re located in the country, we match them up with a planner that we have found and brought on board, and then that planner gets to know them and figures out who they are and what they like and what they don’t like, and if they have a Pinterest board and what their style is and what their preferences are, and then they run with it, and they assemble an entire team of wedding vendors from the venue, the caterer, the rental company, the photographer, videographer, attire, cake, officiant, hair and makeup, everything. And then the couple gets to show up to this day that was perfectly and beautifully created for them that they didn’t have to stress about, pay for, plan, work for. All of our wishes take place just on weekdays, Sunday through Thursday, because all of our wish granters are volunteers. So we do weekday weddings, 50 people or less, alcohol free. And these are small, special, special gatherings where people get to assemble the crew and the team and the network of people that have showed up to just love on them and celebrate. And it’s a day that you get to put your cancer or your Huntington’s or your Parkinson’s or your ALS on the backburner and hopefully just relish in the love that you have for your partner. I wanted to show you guys our website. It’s perfectly easy. You can just go to wishuponawedding.org. We have an Apply tab. You can go through this and you can fill out an application. You can also find us on social media. We’re really active on Facebook and Instagram. This sweet couple right here, Chrissy and Matt, People magazine picked up their story this year, which was just a huge thrill for us. Chrissy and Matt live in Kansas City, and they both have stage four cancer, and they have three teenagers, and I’m a mom of two teenagers, I cannot even imagine trying to be a parent. I’m interviewing tons and tons of young parents lately, and I have such extreme empathy for anyone that is going through this journey while having to care for little ones. And Chrissy and Matt’s wish was to renew their vows, because they don’t know if they get to get their see their kids get married someday. And we surprised Matt and their 14 year old daughter put on her mom’s wedding dress from their wedding 20 years ago, and she came down the stairs and they got to do a daddy daughter dance, and there wasn’t a dry eye in the room, and it was just the most beautiful, special day. So that’s what we’re here for. We just want to bring some love and some light to people. Our application process is always open. We’re reviewing applications and interviewing people on a daily basis. It’s our goal to grant 55 wishes this year. We also do a huge fundraising gala in Chicago every year. That is a blast. I’m excited to connect with some of these other organizations and figure out some ways that we can have some synergy as well. So especially Mallory, my goodness, you, you, I’m running one program – I don’t know how you’re running so many programs, but yeah, that’s who we are, and that’s why we’re here.

Lauryn Cooney 1:12:29
I didn’t expect to be like, wanting to cry in this meeting, but your words are so touching, and these weddings that you guys do are so beautiful. I was wondering, I had a question, do you go to any of the weddings?

Lacey Wicksall 1:12:46
I go to lots of them, and then our wish partner goes to some, if we have board members in the areas. Yeah, I love to send a representative to wishes. And that’s what really brings it home, honestly, I’ve been so touched and moved by, I mean, I’ve met hundreds of our applicants and I love their stories.

Lauryn Cooney 1:13:07
Oh, thank you. I know we’ve had some of our members also participate in your wish. And the weddings are always so beautiful, they hit it out of the park. I mean, it’s beautiful.

Lacey Wicksall 1:13:19
It blows me away.

Lauryn Cooney 1:13:21
Yeah, yeah. So it’s always such a good experience. So yeah, I’m glad that you could share with us, and I hope to see some more weddings from our group soon.

Lacey Wicksall 1:13:33
Yeah, absolutely. We granted a wish a few years ago, a couple in LA named Teresa and Emile. And Teresa, and I became friends, and I got to know her on her journey, and she just spoke so highly of this group in particular, and what a resource and an encouragement it was to her.

Lauryn Cooney 1:13:53
Thank you. I don’t think we have any other questions, unless somebody has a question for Lacey. I think Megan wanted to close us out.

Meagan Lockhart 1:14:04
Yeah, so for those who I haven’t crossed paths with in the past, my name is Megan Lockhart, and I’m the current Mayor of the COLONTOWN community, so me and the Cabinet of five oversee all of the groups, the neighborhoods and the membership. And I can honestly tell you that this is going to be an extremely valuable resource for our members to be able to come back and reference and I know most of you who are still here have already had some COLONTOWN patients through your doors, and I’m excited to get more awareness and have all of your resources connected in a single space to really be able to connect our patients and maybe some of our early onset caregivers to you, Mallory, to this resource so they can access and get more support that we don’t necessarily specialize in but it’s so incredibly valuable to help them on this journey. So thank you guys all for taking the time to join us this morning, and I hope you have a wonderful weekend.