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One Day to Remember

One Day to Remember

One Day to Remember strives to provide a curated experience that is individualized for each family—AND at no cost to them. These can be at home or at local attractions. One Day to Remember gives families dealing with advanced-stage cancer the opportunity to make lasting, positive memories.

Meagan Lockhart 
We have one more presenter today. Last but not least, you have Rachel Antin with One Day to Remember.

Rachel Antin 
Hi, everyone. I can’t believe I’m going last. I feel like I should have gone first. Like you all have amazing resources for families. And it’s really an honor to be able to share with you what we do. I was an oncology nurse. I live in Pittsburgh and I was struggling to find resources for some of my patients. And so that is sort of how One Day to Remember was born. I’m going to share my screen as well.

Rachel Antin
I am a mom of two kids. So I know how difficult it can be to manage day-to-day life and then also put cancer on top of it. So it’s really an honor to do what we do. Like I said, we were founded in 2016. And we’re dedicated to giving parents with advanced stage cancer one fun, cost free day to make memories with their family. So that’s normally on a local scale. The newest research that I found is that one in five adults who are newly diagnosed with cancer are parenting a child under the age of 18. So we know that we have a lot of work to do. And our goal is to bring smiles and joy to children who need it most. We would be honored to have you refer your loved one so that we can be one step closer to making a difference for all the children who deserve to see some light in their darkness during this time. So the signature One Day to Remember outing is a personalized day of activities to enjoy together. And they are custom and curated specifically to each and every family that we get a referral for. We have capabilities to do all different kinds of outings based on their interests, stability and health status. Our outings include the cost of meals and transportation. They also include a portrait session with a professional photographer, and each family receives a professionally printed memory book that is shipped directly to the family after their outing. For patients that happen to be more advanced or in a difficult situation and unable to leave their home, we can provide meals and activities delivered directly to them for what we call A Family Night to Remember, which is something that they can experience in their home. Each family, once they’re referred and we accept the referral, they receive a Welcome Package

Rachel Antin 
You can see a little picture right here with our little Bo the Bear they get. He’s our mascot. Each young child gets a Bo the Bear as just something to be comforting. They each get a journal as well. And that journal was born actually from one of our One Day to Remember families who bought their child a journal just to sort of be able to write through and just draw or whatever. It was a safe space to express their thoughts and fears, and recount their favorite memories of their parent, or just to express their feelings. So, that is the Welcome Box that each family gets. Eligibility criteria is the family must have advanced stage cancer, they must have at least one child 18 or under, we must have medical clearances from a physician before we can start planning and right now we must have patients that live in the United States. Although I really wish we could expand to Canada, let’s talk. So the process if you’re battling advanced stage cancer, and you have at least one child under the age of 18, we would love for you to apply for a One Day to Remember. Our board and medical team will review the application to confirm your eligibility. Once you get accepted you’re in and we will create a custom experience for you and your family at no cost. We would love for you to obviously to enjoy your day with your family. And then upon returning home, you’re part of our One Day to Remember Family and you should get that photo book very soon. Applying is super easy. Go to our website, onedaytoremember.org/apply. If you forget the apply, you just click the Apply button.

Rachel Antin 
And then you’ll see these two options, you can either apply for yourself and fill out our full application or you can refer a loved one or family member to the right. Some of our families have just had some really wonderful things to say about us. This family said thank you all so much for giving us the opportunity to just really live for the moment and forget about being sick for that day, which really says a lot about what we do and why it’s so important. This family said I truly appreciate the gift of time that you gave our family just to be together. I think a lot of people can relate as cancer is expensive. Days like we had today are few and far between. One Day to Remember allowed us to enjoy each other and make memories that we needed. And this one said it was filled with a little bit of tears but mostly a whole lot of laughter and unforgettable memories. I can’t tell you how much this day meant to my family. We will never forget this gift. And I think just the most important thing to realize about our organization is that we want to just provide some quality family time and give people an opportunity to just spend together because we know how difficult it can be to plan that. And I know how difficult it is for me to plan my family day out. And so we’re just honored to be able to plan these experiences for families. It really is an honor to be the reason that these families can smile, even if it’s for a day. I just want to end with this quote that, “you gave us a beacon of light and a blessing in a dark and scary time.” And so if there’s any way that we can help and support and bring these families into Our One Day to Remember Family, it would be our honor. So thank you for the opportunity to be here.

One Day to Remember

One Day to Remember strives to provide a curated experience that is individualized for each family—AND at no cost to them. These can be at home or at local attractions. One Day to Remember gives families dealing with advanced-stage cancer the opportunity to make lasting, positive memories.

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Bright Spot Network

Bright Spot Network

Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection.

Haley Pollack 
Hi, everybody. Thank you guys so much for having me. I was saying earlier that this is really special for me. I am a colon cancer survivor. I was diagnosed with stage 3C colon cancer in 2018. I had a six month old baby and a three year old at the time. And first Colontown was really helpful for me in that experience and has continued to be a community that I’m a part of. So this is really special and I love seeing some familiar faces and names and faces that I don’t know the names and names that I don’t know the faces. So it’s all very cool for me. But so Bright Spot Network was really founded out of my experience and the experience of my cofounder diagnosed with little kids. We couldn’t find the resources that we needed online, we were connected by a common health care professional who saw essentially two young moms who are like flailing. Both of us had babies. My cofounder was diagnosed with breast cancer while pregnant. And when we connected, a lot of what we connected around was the common experience of cancer and little kids.

Haley Pollack 
And so I’m going to share my screen and share a little bit more about Bright Spot. But I just wanted to share kind of where it’s coming from. So our mission is to provide young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery and reconnection. And we do this in a number of ways. Here are our families experiencing some of the things that we do. I’m just gonna go through some of the different program offerings that we have, and then I’m happy to take any questions. But one of our cornerstone programs is Bright Reads. We offer free age appropriate children’s books on big emotions, cancer, grief, and loss. One of the things that we know is that talking to kids about cancer is really important. And for young kids it’s important even if they’re really little and they’re hearing about cancer in the background, hushed tones, all of that kind of stuff. And so we offer kids’ books about cancer. But the other thing is, is that kids that can express their emotions and can use language to talk about how they’re feeling are also going to handle their parent’s cancer diagnosis and treatment in healthier and kind of more well rounded ways. And a lot of the ways that little kids express their feelings about their parent’s emotions, as many of the people on the call might know, is through really big emotions. And so we also offer books just to help kids talk about their feelings. We have a financial assistance grant. So we offer $500, barrier free grants, for families in financial need. The eligibility is it to be in active treatment or recent survivorship, so within a year of your last treatment, and to be the primary caregiver for a child zero to six years old or currently pregnant. And things that are important about this grant is that you don’t need to have receipts, it’s not like a gift card, it’s like $500 cash that goes straight to you. We know that families need money to spend that money in the ways that they see fit for their family. And so we want to respect and trust the families that we work with. And so we offer this grant and the grant was closed as we were inundated with applications, but it is back open as of yesterday. We offer an art kit box. Actually Julie was the first person to get one of our art kits. And she provided really great feedback. So we offer this art kit box that has six art projects in it, the art box goes straight to you and you and your child can just do the art together. To echo something that Dom said, it’s really just fun. It’s an opportunity for parents and kids to do something fun together. We hear feedback from families that this was the first time I felt like a mom again since I started my treatment. Everything is included, you don’t need to go to the store to get the glue, you don’t need to go to the store to get the crayons, it’s all there just to connect. And we know that parents and children that are able to connect in the midst of a crisis, both the parent and the child are going to handle that crisis in a better way and feel better. We also offer kids’ groups. This is new in the last eight months. We have two groups. One is for small kids, zero to five. And that’s really a circle time that’s to be attended with a caregiver, so with a parent. That is Bright Circle. Then Bright Club is for kids five to 11 or five to 12. And that’s an opportunity for kids to come together, these are all virtual, kids to come together, connect with other kids learn some coping mechanisms, talk, hang out, maybe learn some mindfulness, but really just an opportunity for kids to see other kids who have a parent with cancer. And then we also offer support groups. So we have virtual support groups for parents in active treatment, for partners for stage IV parents and for parents in long term survivorship. We also, every October, we have a parenting with cancer webinar series. And we offer other webinars throughout the year that are specific to parenting younger kids.And then finally, we offer Family Resource Navigation. So Carissa Hodgson, our Director of Programs, an LCSW, she will get on the phone with you and just talk about how to organize your medical support team, how to talk to your kids about your cancer, maybe a change in your diagnosis that you aren’t really sure how to broach the topic with your kids, Carissa will get on the phone with you and talk through all of that, and also connect you to other resources like the folks on the call today if that would be helpful. And then we also have a bunch of different web resources. So we have Petunia the Pig Has a Port. We have a bunch of different coloring pages that are just meant to like normalize a body that has cancer, so maybe it’s a goldfish that can’t remember something or we have a an otter that has an ostomy bag. So just a bunch of different coloring pages that you can just sit down with your kid, maybe you’re on the couch, maybe you’re in bed, or maybe you’re not and you’re just coloring together, just a way to connect, but also at the same time to give you an opportunity to talk to your kid about what’s happening. We also a bunch of developmental resources about what your kid might understand or how they might react to your cancer. And then at the top, here, we have this coloring book that is actually customizable. So you can drop in your own family photos, you can name your family, you can name your parent who is the parent with cancer, mom, dad, babo, whatever you call that parent, and go through that book to really make it a child’s book to help to empower your child in the midst of this crisis. And we also have a video series and a bunch of other web resources available. So I think that that’s the long and short of it. It is and I am just really glad to have this opportnity to talk to everybody and feel free to reach out with any questions.

Bright Spot Network

Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection.

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Dougy Center

Dougy Center

Dougy Center provides grief support in a safe place where children, teens, young adults, and their families can share their experiences before and after a death. They provide support and training locally, nationally, and internationally to individuals and organizations seeking to assist children who are grieving.

Meagan Lockhart 
Next up, we’re going to have Rebecca speak with us from Dougy Center and learn a bit more about programs available.

Rebecca Hobbs 
Thank you. Yeah, I am with Dougy Center. We are the National Grief Center for Children and Families. Dougy Center started in 1982, over 40 years ago. And we were the first center of its kind to offer peer support, grief support for children based on a play model therapy way. One of the things that the kids that we started initially talking with have been really talking about their play as a way of being the primary language that they both process and express with. And so our model consist of both a talking portion where kids can learn coping skills, identifying support strategies, identifying feelings, things that are going to kind of be tools for their toolbox. But also we allowed them a lot of free time where they are self directed to go be able to play in either whatever expression rooms they want. So we have art rooms and big energy rooms, and hospital rooms, and sandbox and musics. So we have a lot of different ways for them to be able to process and express what those experiences are like for them. We offer at Dougy Center both bereavement support, which is what we really started with over 40 years ago, we have almost 30 ongoing peer support groups here in the Portland metro area of Oregon and southwest Washington. And we also, nine years ago, started our Pathways Program, which is for kids and teens who have an adult, parent, caregiver, guardian, or a sibling that has been diagnosed with what we call an advanced serious illness. It’s a terminal prognosis of anywhere from months to a few years out generally. And it really allows kids to be with kids, teens to be with teens, and we have an adult caregiver portion as well as adults living with illness support group. So kind of wraparound family support for kids when their parent is going through those last years of their illness. We are not Hospice. I want to say that we are not Hospice. And so many times families connect with us and say, I’m not ready to give up. And I always want to be so reassuring to them that this is not a group for those who are giving up. This is really a group support for families when the illness has advanced so far that their lives are really completely upside down. But there are those that are like I’m looking for that last treatment that’s going to help me and that I’m looking for whatever it is, and we want to maintain hope with them. And what we want to help them with is also transition their hope that when there is no longer hope for a cure, that there is hope for more days ahead that they can be with their families, more quality time, and really being more deliberate in choosing how they want to connect with the people that they love around them in the days that they have left. So Pathways is a powerful program we have. And then of course, our Bereavement Support is ages three through 18, and we have a young adult, multiple young adult groups as well, that meet both virtually and in person here. And then all of our kids and teen groups have a corresponding adult caregiver support too. Because we do know as research shows that if adult caregivers are feeling supported and able to cope better that their kids are doing better as well. So even though kids and teens are kind of what I say the golden ticket into Dougy Center, we offer lots of different ways of supporting their adult caregivers as well. For those interested in participating in an in person group, then we ask them to give us a call and we sign them up for an orientation. It’s just a way for us to be able to show kids and teens kind of what we do here and help them kind of be prepared to join a group. And then after that, we assign them to one of our many, many different groups. For our bereavement support, they are broken down into age. So we have littles three, four and five year olds. They’re adorable and bouncy. We have lots and lots of six to 12 year old groups. Those groups are the most that we have. And they are also broken down into different types of losses and deaths. So we have a chronic illness support. We do also offer healing from a suicide death, a violent death, a sudden death and also for siblings, groups just for kids that have had a brother or a sister die by any cause. And then we have our mothers and teen groups. So we offer lots and lots of different choices for families so that kids and teens can really make the choice that feels most connected and to them in being able to get that support. Our groups are ongoing for as long as a family feels like it’s supportive and helpful for them. In our Pathways groups, once the death has happened, they get to come back and say goodbye to families, which we have found to be invaluable to all of our participants. And then they can transition to a bereavement group. And for our bereavement groups, some kiddos come in for a short while and they don’t stay too long. I had a kiddo come in just recently, who after like six groups was like, I’m done, I’ve realized there’s other kids like me, and that’s all I needed to know. And then we have other kids and teens that they come for years, and we don’t put a time limit on their grief for them. As many of you have said, there are so many other challenges that our kids and teens are also facing that sometimes a parent or a siblin’s death is just one of many challenges they have. So being able to offer that support, sometimes up for years, is really important to families. And that is offered to families at no cost. So a family never has to pay for any of the support they receive here. We do realize that many of our families that would like to support Dougy Center and have those resources do not live in the Portland, Oregon metro area. So we do offer an extensive website. And I hope people can take a look at that. We have lots and when I say lots, it is lots and lots of resources, both for adults who are supporting kids and teens, as well as teachers and other school administrators. We have activities for kids of all ages on our website. Everything is downloadable so people can use them however they wish to. We have an extensive podcast listening for people who want to be in the car driving and just listen and get support that way, as well as additional resources. So I’m hoping that people can check out our website and call if they have any questions or information. There’s always a program staff person available to answer questions, and even just things like how do I tell my child that their parent is going to die, or their parent just died? I don’t have the language for that. And so a lot of our phone support, even from people in other states is offering words and encouragement and just that support to adults to be able to have those really, really hard conversations with their kids. Thank you.

Dougy Center

Dougy Center provides grief support in a safe place where children, teens, young adults, and their families can share their experiences before and after a death. They provide support and training locally, nationally, and internationally to individuals and organizations seeking to assist children who are grieving.

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Rainbows for All Children

WunderGlo

The WunderGlo Foundation will not rest until there is a cure for colon cancer. The Foundation strives to save lives and support cancer warriors everywhere by raising funds for colon cancer research, promoting awareness about prevention of and treatment for colon cancer, and encouraging healthy lifestyle choices. Through its efforts, the WunderGlo Foundation seeks to empower and and inspire those fighting the disease and those finding ways to eradicate it.

Meagan Lockhart
Our second presenter is Becky Keller with the WunderGlo Foundation. Thank you so much for joining us and I can’t wait to hear more about the offerings that you have for the kids and then I think you have one for the parents as well.

Becky Keller 
Yes. Okay, so I don’t have any visuals, but I’ve provided flyers that I’ve sent that can be distributed to anyone who wantsmore of this information. To give you a bit of a background, The WunderGlo Foundation was founded by my daughter and only child Gloria Borges one year after her stage IV colon cancer diagnosis at the age of 28. She started a blog immediately which is also support, and continues to be alive, that is called WunderGlo. And it’s actually pronounced Wunder Glo. So Wunder in German means miracle and glo is Gloria and she received so many emails and requests on what she’s doing with lifestyle, diet, exercise, treatments and things of that nature, she knew one year after she had to go bigger. She also found that with colorectal cancer being the most underfunded cancer, she needed to do something where our mission funded curative research. We’ve funded 1.75 million dollars to date. So my daughter passed away in January of 2014, a little less than a month after her 32nd birthday. I left my 30 year career in commercial banking to take over WunderGlo. We are now in our 12th year as an organization. Cancer, taking away the ability for my daughter to have children, her being my only child, I’ll never be a grandmother, but WunderGlo is my baby to take care of and who I care about is the children who it affects. So I care about the patients, we do a lot of navigation, we have patient programs and with our affiliate doctors at USC Norris, and at Keck, I do a lot of patient navigation and support, which I will be also doing this morning. But cancer leaves a lot of shrapnel in its wake. And I believe that we all care about children who are in children’s hospitals and who have cancer themselves, of course. Of course we need to care about them. But I feel that there’s a forgotten group in there. And they are the children whose parents are going through cancer who possibly pass away from cancer, but they watch what happens. It also affects them financially. So in 2016, we started The Children of WunderGlo Programs. We currently have two programs and on our way to launch a third. But the first one we started back then is our holiday gift distribution drive. We give presents to the children whose parents have cancer or survivors or who have passed away, both locally throughout the country, we reach one family in Canada, and we reach one family in Malaysia. So we’ve been doing that now, this is our eighth year doing it. So I want to say it was 2017/2018 when we started our Children of WunderGlo Scholarships. It was inspired by a cancer patient who I supported, who went for his insurance for his two young children and found out that day that he had stage IV colon cancer and they denied his insurance. He worked up until about two days before he passed away because he wanted to make sure his two boys went to college. We started our WunderGlo Scholarships to support children who have lost a parent to colorectal cancer. Backup a little on the children’s presents. It’s for children of all cancers, it could be breast cancer, lymphoma, it is not just restricted to colorectal cancer. Our scholarships are. They are directed to children, graduating high school seniors, who are pursuing their secondary education and have lost one of their parents to colorectal cancer. I talked to them, I’m currently in the process of sending all their notifications out and they are so moved. And it’s so meaningful to them that a group sees them. And I always tell them, this is your graduation present from your mom or from your dad to you. Because we would never even know about you or be connected if you didn’t lose a parent to the disease that we’re trying to eradicate through our research funding. So it’s an amazing program that is offered. As of this year, we’ll have awarded 33 scholarships to date. And we’re continuing on. We always look for greater support in that. We have the GPA at a 2.0, the minimum GPA, because we’re not going to expect that you’ve lost a parent to this disease and your life’s been easy and you’re a 4.0 student. So it is not based on GPA. It’s based on your essay, letter of recommendation and other factors that our scholarship committee votes on. We wind up having anywhere from nine to 12 in the voting committee. I don’t vote because I know too much about the kids. Hey, you didn’t send me this report yet. I don’t want anybody penalized because they weren’t able to get me all the paperwork the way they should have. The next program that we have is for patients, survivors, caregivers and their children if they like and that is our monthly Reiki and Guided Meditation Program that we’ve had since 2015. We had it on site at a place in Los Angeles for patients everywhere, cancer patients of all types in Southern California and then on site at USC Norris Cancer Comprehensive Center for the patients that received treatment there. COVID changed it, like it changed everything, moved us to a Zoom format, which is actually pretty wonderful. People don’t have to drive in that stressful traffic to get anywhere. We’re able to reach people across the country. Anywhere can Zoom in for our peaceful hour and it truly is this little circle of love that we’ve got. Our Reiki Masters are otherworldly and just bring you the peace and the balance that you need for those days and there again I’m welcome for any questions afterwards. If you want to post my email, people can email me or text me or however they’d like to get a hold of me but I’m more than happy to discuss the program. Quick question to answer is a lot of people say if you’re in cancer treatment, can your child apply to our scholarships? No, because our board had approved the scholarships for someone who has lost a parent to cancer. What happens to colorectal cancer? Their lives are different. If you’re still living with your child, and you’re there at graduation, all these kids don’t have their parent at graduation. Now, in the event that we don’t place all of our scholarships that year, yes, we will consider colorectal cancer patients in treatment. But you have to have guidelines somewhere. You know, what happens after that? They’ll say, Well, I’m in treatment for lymphoma, and I’m in treatment for somethig else. You have to have a guideline. So our guideline is for students who have lost a parent to colorectal cancer and are pursuing nursing school, military, community college, four year, whatever they are pursuing. And that’s it.

Meagan Lockhart
Thank you, Becky, we do have a question.

Becky Keller 
Sure.

Meagan Lockhart 
When is the application window for the scholarships?

Becky Keller 
it starts January 1 through April 15th. And then we let the students know on May 10th. And that’s when we start sending everything to the schools and make sure that they have our scholarship, their award listed on their achievements as graduates.

Meagan Lockhart 
Awesome, that’s fantastic. Thank you so much. It was so great to hear more about what Gloria did, and the fact that you’re continuing her legacy. It’s been so successful for not only colon cancer research, but also reaching these underserved kids.

Becky Keller 
Yes, they’re kind of my grandkids to care about.

Meagan Lockhart 
That’s wonderful.

Becky Keller 
They mean a lot to me.

Meagan Lockhart
Thank you so much for coming.

WunderGlo

The WunderGlo Foundation will not rest until there is a cure for colon cancer. The Foundation strives to save lives and support cancer warriors everywhere by raising funds for colon cancer research, promoting awareness about prevention of and treatment for colon cancer, and encouraging healthy lifestyle choices. Through its efforts, the WunderGlo Foundation seeks to empower and and inspire those fighting the disease and those finding ways to eradicate it.

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WunderGlo

WunderGlo

The WunderGlo Foundation will not rest until there is a cure for colon cancer. The Foundation strives to save lives and support cancer warriors everywhere by raising funds for colon cancer research, promoting awareness about prevention of and treatment for colon cancer, and encouraging healthy lifestyle choices. Through its efforts, the WunderGlo Foundation seeks to empower and and inspire those fighting the disease and those finding ways to eradicate it.

Meagan Lockhart
Our second presenter is Becky Keller with the WunderGlo Foundation. Thank you so much for joining us and I can’t wait to hear more about the offerings that you have for the kids and then I think you have one for the parents as well.

Becky Keller 
Yes. Okay, so I don’t have any visuals, but I’ve provided flyers that I’ve sent that can be distributed to anyone who wantsmore of this information. To give you a bit of a background, The WunderGlo Foundation was founded by my daughter and only child Gloria Borges one year after her stage IV colon cancer diagnosis at the age of 28. She started a blog immediately which is also support, and continues to be alive, that is called WunderGlo. And it’s actually pronounced Wunder Glo. So Wunder in German means miracle and glo is Gloria and she received so many emails and requests on what she’s doing with lifestyle, diet, exercise, treatments and things of that nature, she knew one year after she had to go bigger. She also found that with colorectal cancer being the most underfunded cancer, she needed to do something where our mission funded curative research. We’ve funded 1.75 million dollars to date. So my daughter passed away in January of 2014, a little less than a month after her 32nd birthday. I left my 30 year career in commercial banking to take over WunderGlo. We are now in our 12th year as an organization. Cancer, taking away the ability for my daughter to have children, her being my only child, I’ll never be a grandmother, but WunderGlo is my baby to take care of and who I care about is the children who it affects. So I care about the patients, we do a lot of navigation, we have patient programs and with our affiliate doctors at USC Norris, and at Keck, I do a lot of patient navigation and support, which I will be also doing this morning. But cancer leaves a lot of shrapnel in its wake. And I believe that we all care about children who are in children’s hospitals and who have cancer themselves, of course. Of course we need to care about them. But I feel that there’s a forgotten group in there. And they are the children whose parents are going through cancer who possibly pass away from cancer, but they watch what happens. It also affects them financially. So in 2016, we started The Children of WunderGlo Programs. We currently have two programs and on our way to launch a third. But the first one we started back then is our holiday gift distribution drive. We give presents to the children whose parents have cancer or survivors or who have passed away, both locally throughout the country, we reach one family in Canada, and we reach one family in Malaysia. So we’ve been doing that now, this is our eighth year doing it. So I want to say it was 2017/2018 when we started our Children of WunderGlo Scholarships. It was inspired by a cancer patient who I supported, who went for his insurance for his two young children and found out that day that he had stage IV colon cancer and they denied his insurance. He worked up until about two days before he passed away because he wanted to make sure his two boys went to college. We started our WunderGlo Scholarships to support children who have lost a parent to colorectal cancer. Backup a little on the children’s presents. It’s for children of all cancers, it could be breast cancer, lymphoma, it is not just restricted to colorectal cancer. Our scholarships are. They are directed to children, graduating high school seniors, who are pursuing their secondary education and have lost one of their parents to colorectal cancer. I talked to them, I’m currently in the process of sending all their notifications out and they are so moved. And it’s so meaningful to them that a group sees them. And I always tell them, this is your graduation present from your mom or from your dad to you. Because we would never even know about you or be connected if you didn’t lose a parent to the disease that we’re trying to eradicate through our research funding. So it’s an amazing program that is offered. As of this year, we’ll have awarded 33 scholarships to date. And we’re continuing on. We always look for greater support in that. We have the GPA at a 2.0, the minimum GPA, because we’re not going to expect that you’ve lost a parent to this disease and your life’s been easy and you’re a 4.0 student. So it is not based on GPA. It’s based on your essay, letter of recommendation and other factors that our scholarship committee votes on. We wind up having anywhere from nine to 12 in the voting committee. I don’t vote because I know too much about the kids. Hey, you didn’t send me this report yet. I don’t want anybody penalized because they weren’t able to get me all the paperwork the way they should have. The next program that we have is for patients, survivors, caregivers and their children if they like and that is our monthly Reiki and Guided Meditation Program that we’ve had since 2015. We had it on site at a place in Los Angeles for patients everywhere, cancer patients of all types in Southern California and then on site at USC Norris Cancer Comprehensive Center for the patients that received treatment there. COVID changed it, like it changed everything, moved us to a Zoom format, which is actually pretty wonderful. People don’t have to drive in that stressful traffic to get anywhere. We’re able to reach people across the country. Anywhere can Zoom in for our peaceful hour and it truly is this little circle of love that we’ve got. Our Reiki Masters are otherworldly and just bring you the peace and the balance that you need for those days and there again I’m welcome for any questions afterwards. If you want to post my email, people can email me or text me or however they’d like to get a hold of me but I’m more than happy to discuss the program. Quick question to answer is a lot of people say if you’re in cancer treatment, can your child apply to our scholarships? No, because our board had approved the scholarships for someone who has lost a parent to cancer. What happens to colorectal cancer? Their lives are different. If you’re still living with your child, and you’re there at graduation, all these kids don’t have their parent at graduation. Now, in the event that we don’t place all of our scholarships that year, yes, we will consider colorectal cancer patients in treatment. But you have to have guidelines somewhere. You know, what happens after that? They’ll say, Well, I’m in treatment for lymphoma, and I’m in treatment for somethig else. You have to have a guideline. So our guideline is for students who have lost a parent to colorectal cancer and are pursuing nursing school, military, community college, four year, whatever they are pursuing. And that’s it.

Meagan Lockhart
Thank you, Becky, we do have a question.

Becky Keller 
Sure.

Meagan Lockhart 
When is the application window for the scholarships?

Becky Keller 
it starts January 1 through April 15th. And then we let the students know on May 10th. And that’s when we start sending everything to the schools and make sure that they have our scholarship, their award listed on their achievements as graduates.

Meagan Lockhart 
Awesome, that’s fantastic. Thank you so much. It was so great to hear more about what Gloria did, and the fact that you’re continuing her legacy. It’s been so successful for not only colon cancer research, but also reaching these underserved kids.

Becky Keller 
Yes, they’re kind of my grandkids to care about.

Meagan Lockhart 
That’s wonderful.

Becky Keller 
They mean a lot to me.

Meagan Lockhart
Thank you so much for coming.

WunderGlo

The WunderGlo Foundation will not rest until there is a cure for colon cancer. The Foundation strives to save lives and support cancer warriors everywhere by raising funds for colon cancer research, promoting awareness about prevention of and treatment for colon cancer, and encouraging healthy lifestyle choices. Through its efforts, the WunderGlo Foundation seeks to empower and and inspire those fighting the disease and those finding ways to eradicate it.

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Kesem

Kesem

When a parent has cancer, their kids need support too. Because of Kesem, that transformative support is possible. Passionate and expertly trained college students, Kesem alumni, and staff lead free programs that meet your kids where they are, from ages 6-18.

Dom Hollins 
Alright, ready to go. So I represent Kesem. I’m Kesem’s Chief Brand Officer, but I want to talk about Kesem today. For those of you who are unfamiliar with what we do, our mission is to support children through and beyond their parent’s cancer with free, funfilled, creative programs and a lasting community. I’ll dive into a little bit more about what that looks like. But we really center on creating fun, supportive spaces for children. In terms of what we do, just going into little bit more detail here, we really focus on thinking about building community as a way to really transform the experiences they have with their parent’s cancer journey. So as I mentioned before, we’re a free organization for all of the programs and services we offer. Our services are free and year around support. And what’s also important about who we reach is that we’re talking to children who have a parent that is at any stage of their cancer journey. So we want to make sure that all kids, no matter what their current experiences, if they have lost a parent or caregiver, if their parent is going through remission, or currently under treatment, that Kesem is a space for them to come and connect with others and get support. The way our model works is that we actually focus on peer-to-peer support. So we actually focus on engaging college students who are our core volunteers who actually deliver our programs. So they deliver our flagship program called Camp Kesem, which I’ll talk about in a few moments, but also a bunch of other free programs that we provide throughout the year in support of these children. And what we really are just focusing on is just creating a space for these young people to escape from their parent’s diagnosis, or just even if it’s for a short period of time, to really have a space to just be a kid, learn some coping mechanisms as well, and then just kind of fostering this ongoing support and community that’s really focused on helping these kids build resilience, confidence and just kind of find happiness and joy. So we just really invest in that recognizing that when there’s a cancer diagnosis, as we all know, right, it doesn’t just affect the person with the cancer diagnosis, it affects the whole family. And so we want to make sure that we are able to lift these children up and hopefully as a byproduct of that it is also supporting the family as well. In terms of where we are and where we offer our programs, we are in 44 states. So we’re a nationwide organization. As I mentioned before, we lean on our student volunteers on college campuses.

Dom Hollins 
We have more than 130 chapters across the country as well. You can see where we are a little bit in this map. Our student leaders are 4,000. 4,000 student leaders serving almost double that in terms of children each year. So we are really everywhere. And we work really diligently to connect families with chapters that are close to them, and that they can build community and have that localized support.

Dom Hollins 
In terms of our programs and services, as I mentioned before, Camp Kesem is what a lot of people know us as. We do offer, obviously our flagship program, that’s how we got started. We have some other touchpoints that we’ve introduced as well that we’re really excited about to provide that year around support, but Camp Kesem, in particular, is our free sleepaway camp through the summer. It’s for children 6 to 18. As I mentioned, it is for a family cancer diagnosis at any stage, and we really just focus on just creating those fun experiences. What is really important and I think a benefit of our model as well is that once a child is a part of Kesem, they are welcome back year over year until they’re 18 years old. And so it’s one of those that you can build confidence that your child has something to go back to, faces that they’ll know, relationships that they can kind of lean on year over year and we think that’s just really important in terms of that community of support. When you think about what we do at camp, it’s a bit of a different model. As I mentioned before, we focus on fun. So the activities are really targeted towards kids at their specific age groups. We have our camp counselors, we also have professional staff that support with mental health as well as just ensuring our safety protocols and policies are adhered to. But it’s a camp and so it’s a lot of fun, traditional camp activities. And there’s some tailored programming that we do throughout the week that really creates the space for children that want to to really talk about their experience with cancer. It’s very much an opportunity for you to opt in, if you’re comfortable, but also allowing children just to hear from others and if they feel like they don’t want to say anything, we’re not forcing that. So it really is creating a space for kids to kind of map out how they want to engage, and cope and reflect on their experience. In addition to the programming that we have at camp, we also try to accommodate families as best we can. So if you are a family that might be interested or know someone that might be, but you’re saying, oh, there’s some barriers to getting us to camp, or there some things I’m concerned about, I would encourage you to still reach out to us because we really do try to accommodate specific needs. And so that can be anything towards I need help with travel or I need help with getting camping supplies. We have some avenues to help families navigate that. And then in addition to that, we have these year around offerings, our Friends and Family Days, which are these in-person fun day events that happen in the spring and summer. Kesem By Your Side, which is a local service that we offer through our chapters that if you are a family that may need special support, some additional support at home, or need things to be brought to you if you’re going through some challenging phases of your treatment, there are ways that you can actually tap into having our local leaders kind of come and provide some additional volunteer support directly with your family. And so we wanted to tailor that. And our Special Deliveries are some messages that we send throughout the year to ourkiddos that are just recognizing their birthdays, but also more poignant moments like memorials just so they know that they’re not forgotten, and that we’re thinking of them at these critical milestones throughout the year. And everyone who joins our community gets a warm welcome just kind of inviting them to be a part of Kesem and helping to set the expectations for what we do, and how we’ll show up for them throughout the time that they’re a part of our programs. Just going to highlight here, what we know to be true from our years of practicing and delivering for families is that we do have an impact. We have heard from our parents that their child is advancing and having great strides in areas of self esteem, coping skills, competence, as well as social emotional intelligence through the benefits of our programs.

Dom Hollins 
So just some stats here in terms of what parents have said about Kesem. And we are just so grateful that they see the value and think of us as part of their family and an extension of their family to the support that we offer. As I mentioned, we have a multitude of programs for families to kind of lean into. We currently have open seats available for our camps this summer, which are actually starting in just less than two weeks. But a number of our chapters across the country do have seats available. And so I would encourage anyone that is interested in applying or wants to learn more just to visit our website at kesem.org. You can apply directly on the website and we’re moving very quickly to address those applications and get signups and get folks information about attending camp this summer. That’s all. Thank you.

Kesem

When a parent has cancer, their kids need support too. Because of Kesem, that transformative support is possible. Passionate and expertly trained college students, Kesem alumni, and staff lead free programs that meet your kids where they are, from ages 6-18.

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Oh You’re So Tough

Oh You're So Tough

Oh You’re So Tough aka Chelsea Gomez emphasizes humor and art as a way to cope with cancer and chronic illness, and advocates for the AYA (adolescent and young adult) cancer community and the cancer community as a whole.

Meagan Lockhart 
We have Chelsey Gomez here with us. And one thing that I think is the reason I put her last is she really takes a number of these different aspects to mental health and wellness and puts them together. So she specializes and has a Instagram community of Oh, You’re So Tough. She is an artist and used art to get through her own cancer diagnoses. And has now turned that into a thriving community for cancer patients to not only share their stories, but to really break down the social barrier barriers and stigma related to cancer and the cancer journey that patients go through. So welcome, Chelsea. And I can’t wait for you to give us a bit more information about what you do.

Chelsey Gomez 
Hi, everyone. So my presentation is going to be a little bit less formal. But I’m not an organization. But I am just a human who had cancer who thought we could probably do a little bit better in supporting people. So a little bit of background is I had Hodgkin’s Lymphoma two times and I went through a stem cell transplant in the middle of the pandemic. Literally when Florida was completely shut down, I was in the hospital getting my new cells. So when I returned home, I had to take my young daughter out of school because I couldn’t get sick and we were just home together. My husband, my daughter and I was just trying to recover. So as a form of coping with all the trauma that I had experienced in the last two years, I just made a decision one day to go buy an Apple Pencil and downloaded an app called Procreate. And I just started drawing about the way that I actually felt about cancer. And so much of my cancer experience had been trying to live up to what everyone else tells me I should be, so strong, brave, a warrior, a fighter. I just never related to those things. I always just felt scared and kind of out of control and sad and nobody was really, at the time, talking about those things openly on the internet. So I just took a risk and kind of put myself out there and started sharing these drawings. I started sharing some very vulnerable YouTube videos about the stem cell transplant process and how I was feeling. And instead of being met with what I thought would be like, What are you doing girl, it was like, Hey, we feel like this too. And slowly but surely over the last, close to three years, it’s hard to believe, but close to three years, I’ve been able to garner community on Instagram of very like minded people who are just truly a supportive community within themselves. Like, if you go to my page on Instagram, you can see there are people commenting back and forth all the time supporting each other. And in a very less formal way, I do connect people every other Friday. I do a little thing where people want to become friends. And I just kind of give some very brief overview of them, and then connect people because what I was seeing in my DMs was there were people who needed support, and they would be awesome friends, like, maybe you love rock music, and this one loves rock music and you both have cats. I was like, yes, you should be friends. So I do all of that. Also, I have developed my own brand, which is nontraditional cancer products I sell through Etsy. They are all humorous, because that’s how I feel like dealing with such a sad topic as cancer. That’s a way that we can kind of do it together. Because if not laugh, I guess we are just gonna have to cry. So I’d rather just laugh most of the time. And if you go to my page, you’ll see that it mainly reads as like a diary into my feelings about cancer. But you also read where people go, Hey, are you reading my diary? Are you in my head? And it’s like, no, I’m not. But I am at the same time because our experiences are so intertwined. And we don’t talk about them enough. So we feel isolated. So I think having a safe place to do that is important. Another project I started, which anybody listening is free to submit to is I have a twice weekly art project where I illustrate anonymous submissions from the cancer community. It can be from caregivers, patients, whatever. And it gives them a safe place to talk about these experiences that they’ve had and see them somewhere and maybe share them but people don’t know they’re from them. I keep everything confidential and safe. A couple of things that I do out in the community is I really believe in uplifting existing resources. So I have a big resource guide that I have put together on my page and I always share. So if there are events like this, or whatever I’m like, don’t need to reinvent the wheel, we have these resources, and I help get them to the people you’re trying to reach. And I think that’s really important. I was also fortunate enough to start a young adult art club, and that is in partnership with Gilda’s Club Madison and Gilda’s Club Middle Tennessee. And we have been doing it for close to a year and a half now. And our last workshop filled up within 24 hours, and our waiting list was filled within 24 hours. So if anyone out there is listening and wants to partner with our club, please hit me up because we think that it’s a really, really amazing program. And the sense of community and vulnerability and fun that we have is really awesome. Like we had a Taylor Swift lyric workshop, we had a cookie decorating and next month we’re having a thrifted picture ghost painting one if you’ve seen that all over the internet. So I really believe in bringing new ideas and new concepts. And I also believe in meeting people where they are, they’re already on social media. So I know that a lot of times people want to get people off of social media onto another app. Well, sometimes it’s important to meet them where they are, and they’re already there looking for you. And so you just kind of have to know where to look. Just a few more things I want to mention is I also volunteer with Bright Spot. I’m on their parent board. I’m really passionate about their organization. And they give away a few of my books that I wrote for children about cancer, because I saw with my own young daughter that there wasn’t enough out there that wasn’t scary. Like I just never really wanted to say, chemotherapy or all those terms that I don’t even want to hear and a kid cannot have any concept of. So I think that is important. And I’m also excited that I have began working with a lot of different research studies. So probably on the backend you guys don’t know, but I have been working on them and kind of seeing how can we leverage social media to better inform mental health, better inform people on even medical issues, like make sure we’re not having misinformation being spread. And I’m really excited. I’ve also been able to redesign some research materials recently, because I know how it is to be handed that book that is just like the scariest stuff you’ve ever read. And so I’m like, hey, if we can just make it a little less scary and a little more rainbows and glitter and make it a little bit more easier to digest, I think that’s really important. So I’ll stop talking now. But I’m happy to answer any questions. And I appreciate you having me here, even though I’m not like a big org or anything, but I am here in the community, really doing some grassroots things to try to make everything better for people.

Meagan Lockhart 
Thank you so much, Chelsea. 

Oh You're So Tough

Oh You’re So Tough aka Chelsea Gomez emphasizes humor and art as a way to cope with cancer and chronic illness, and advocates for the AYA (adolescent and young adult) cancer community and the cancer community as a whole.

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Cancer Wellness Center

Cancer Wellness Center

A cancer diagnosis changes everything. Whether you’re living with cancer or are a loved one, Cancer Wellness Center offers professional counseling, social support, and nutrition and wellness services after diagnosis, throughout treatment, and beyond.

Meagan Lockhart 
I’m excited to hear more. Welcome Savina.

Savina Chacheva 
Thank you so much for the warm welcome Meagan and Colontown for having us today. I’m excited to meet everyone here and share more about the center and the services that we have available. As Meagan mentioned, we are located in Illinois, however, and largely because of the pandemic, we were able to expand and reach more people through our virtual offerings on Zoom.

Savina Chacheva 
So I will share my screen and just kind of give you a little bit of an overview regarding the Cancer Wellness Center. The Cancer Wellness Center was founded in 1989. We were a small organization initially focused on doing a hotline and a couple of different support groups and wellness offerings. Since, in the last 34 years, we’ve grown significantly and offer now a wide variety of services, which I will get into further in my presentation, but we serve about 1,400 people each year. And that includes both those diagnosed with cancer, their loved ones, and then anyone who’s lost somebody to cancer as well. Everything that we do and that I will talk about is free of charge. And we make that happen because of the generosity that we have of individual donors, corporations, foundations who support the work that we do at the center.

Savina Chacheva 
So who we serve, as I mentioned, we do not provide services just for the cancer patient. We serve anyone impacted. So that means those that are diagnosed, and that is at any point in diagnosis, whether they’re newly diagnosed, in treatment, with a recurrence, or if they have completed treatment. We provide services to both adults and children. So we do have a child life specialist on staff, and a child psychologists on staff who can work with kids who either have a cancer diagnosis, or have a parent or a loved one with a cancer diagnosis as well. And then as I did mention, unfortunately, there is grief in the cancer experience. We do provide support for those grieving the loss of a loved one. The majority of our staff speaks English, we do have two Spanish speaking therapists as well, and have just recently added Romanian and Russian to our list as well. As I mentioned, we have a wide range of services that we do at the center. My focus as the Program Director is the nonclinical services. So I focus really on the education and wellness at the center. For education programs, those are ones that you can easily access from anywhere, a lot of them right now are virtually offered through Zoom. We do have a program tonight on cancer and pain and managing pain. So if you’re interested, I’ll put that in the chat here. The mental health piece that Meagan invited us for and kind of what we do and where most people come to us because of is the counseling and support groups. As I mentioned, there is a wide range in who we serve, and how we support the families. In addition to doing counseling, we have support groups. And those are divided by men’s, women’s, we have co-ed, young women’s, we’re recruiting for a young men’s group, young adults, which is also a co-ed so anybody between the ages of 20 to 40. There’s not a strict cut off, it depends on kind of where they are in their life stages, significant others so for those who are caring for a loved one, we do have a pediatric group as well and then parenting with cancer. A lot of the groups that we bring to the center are based on demand. So if we do find that there is a need for any other groups, we will add as needed. So if there’s something you don’t see on here that you’re like, you know, I’m curious Savina if you guys are offering something on young adults who are caregivers, we’ve done that. We don’t at the moment, but feel free to reach out to us and we can always put you on a waiting list as we’re growing groups too. And then as I mentioned, part of my job is the wellness services at the center too which includes stress reduction, yoga, exercise, weight loss, mindfulness. I kind of lump in nutrition in there too. And then we do have a wig salon at the center. That is only in here in Northbrook in Illinois, for people that have lost their hair due to treatment. As I mentioned, the wellness and education can be accessed virtually. We do have many of them also recorded and can be viewed afterwards on YouTube. So if there’s a topic that you’re interested in, I’ll share our YouTube channel with Meagan who can provide it as a resource after if there’s a topic you’re interested in that maybe you missed. We do record and publish many, many of them. The counseling and the support groups we’ve expanded. We do have some therapists that can provide services in different states.

Savina Chacheva 
I kind of have the full list on here for you. That is limited as most of our staff is Illinois based but we do have that offering right now. And so how do we make all that happen? It’s our community. We have many volunteers who deliver classes, lectures, and support the center in that way too, and they give up their time. We train graduate students in counseling. So our clinical work is professional, trained therapists. And then we do provide additional training for students so that we could really grow that niche population in doing counseling for the cancer community. We fundraise in order to, as I said, support our programs. So in addition to having individuals who donate to us, corporations, and grants, we do have fundraising events throughout the year. We have four major ones. We have actually our big annual benefit coming up in two weeks. We also are supported by our Board of Directors and our Associate Board.

Savina Chacheva 
I just wanted to share with you, this is feedback that we get from our clinical services. So from that mental health perspective that we do. A lot of people who utilize our services find a lot of benefit in reducing their stress, managing and understanding their cancer experience, increase their social support, improve communication with their support system, so whether that’s with their caregivers, or even their healthcare providers, we empower people to seek that support for themselves and ask questions and have that guidance from us.

Savina Chacheva 
And how do you get connected? I have a QR code here that links to our website. I’ll also put the website in the chat. And then I have a picture here of our Intake Coordinator, Alana Lebovitz. Alana works Monday through Friday, and she usually gets back to people within a business day to do a short intake and then refer them to programs and services. Thank you so much. As everybody, I answer questions at the end. Thank you.

Cancer Wellness Center

A cancer diagnosis changes everything. Whether you’re living with cancer or are a loved one, Cancer Wellness Center offers professional counseling, social support, and nutrition and wellness services after diagnosis, throughout treatment, and beyond.

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Imerman Angels

Imerman Angels

Imerman Angels provides comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there.

Jackie Herigodt 
Thank you, I’m super jazzed to be here too. And I think we should hire you potentially for a commercial because that was fabulous. I feel like I don’t even need to present now. But I guess I will. So thank you. I appreciate it. Let me pull up my screen sharing. So I don’t know if everybody or anybody on this presentation has heard of Imerman Angels besides Megan. But I’m gonna give you a little intro on what we do, how we do it, why we do it, and who the heck we are. Imerman Angels basically, just as Meagan so nicely said, we’re a peer-to-peer organization.

Jackie Herigodt
Our mission is basically we are hoping that in this world, you do not have to go through this cancer experience alone. There’s no reason for it. Because if it’s not us, it’s Colontown. If it’s not Colontown, it’s other organizations that can really help somebody go through the feelings, the diagnosis, everything that goes along with this cancer experience, whether they are going through it as a survivor, fighter, a thriver, a warrior, however, you see yourself a caregiver, a caretaker, a previver. There’s so many elements, so many members in this journey. And we just want to let you know that there’s support out there. You do not have to go through this alone. So our specific mission is to connect cancer fighters, survivors, caregivers, previvors to someone else that’s been there and done that. And it is, just as Meagan said, one-to-one. It’s a different makeup than support groups. Because it is your person. We are super specific about our matches and how we go about it.

Jackie Herigodt 
So this is a little bit about me. I always like to share my why. My hair was much better this day. So I just want to say that my reason for being here is definitely personal, beyond professional. So, last week, I celebrated my 11 year anniversary at Imerman Angels. It’s hard to believe. This year I took on a new role called the Director of Partnerships and Engagement. And why I joined IA is because previous to my experience here, I had lost my mom, my aunt, my grandmother, my uncle, grandfather, all to different cancers. I didn’t know anybody that had gone through that experience of losing so many family members. And it was really scary and isolating in itself to watch these people go through these experiences. And back then, the genetics was not as big of a thing, but you know that when you have your family members being impacted by cancer like that, it just makes sense that you could be potentially hit. So when I heard about Imerman Angels, I thought, oh, goodness, I need to know more, I need to like meet other people that have gone through this. And I actually met Jonny Imerman who is our founder. And that was actually my first survivor. I never even knew that was a thing, because for me, I had only seen people get diagnosed and not make it through to the other side. And so, right away, I was enlightened, I was intrigued, I wanted to get more involved with the organization to learn more, and to know that there was people out there that understood what I had gone through, but also people that were going through this and thriving. And so it was great to meet Imerman Angels. And so I started as a volunteer, and then they couldn’t get rid of me. So here I am, 11 years later. And just so grateful to be able to share this story with you. Fast forward, 2019, my sister was diagnosed with stage IV breast. And then while I was cold capping her got the diagnosis of skin cancer. So again, very personal. Let me fast forward a little bit more, the genetics component definitely comes into play. So 2019, we both went and had genetic testing. My sister got what was called a VUS, a variant of uncertain significance. And fast forward to 2022, they actually updated it and said, she has Lynch Syndrome. So my sister is a carrier of Lynch Syndrome, and so is my nephew. Luckily, I am not. So the genetics come into play. But all that to say that you can see this trajectory and changing of cancer and all of this, and this is why I’m involved with Imerman Angels, and so passionate about it. So basically what we’re doing so that it impacts you, is we can find you somebody in this dark room of cancer. So again, just going back on if you’re thinking you’re the only one that’s been there, done that, don’t, because there’s other people. And we’re really connecting you on someone that we consider a cancer confidant, someone that you can talk to, and share your innermost secrets. You know, sometimes as a survivor, we hear this story all the time, you don’t want to talk to your caregivers about it, because they don’t get it. Sometimes you don’t want to talk to your social worker, sometimes you don’t want to talk to your therapist, sometimes you just want to talk to somebody who understands what you’re going through, because they have internally felt those exact emotions, or hearing it from your doctor is one thing where they’re like, ah, you’re gonna be fine, hearing it from somebody who’s actually gone through it, that changes the whole trajectory in your brain, your perspective says, okay, I see you, I see you 10 years later, I know that I can be there too. And so that’s what we’re able to give you, a mentor Angel. That’s your cancer confidant, so your peer. So this person can be a cancer survivor, a previver, a caregiver. Again, the names get kind of sticky. Some people don’t like these titles, but just for our conversation to make it easier, somebody that’s gone through this, walked the walk so they can talk the talk to somebody else that’s further on down the road. We’ve heard this from some of our mentors, but one of the quotes that I’ll never forget was, Cancer made this gentleman “feel like a victim, but becoming a mentor Angel allowed him to feel like a hero”. And so if you’re in this presentation, if you’re hearing this, if you’re watching this, and you’re like, I want to give back somehow, but I can’t go somewhere, I can’t do it every day, I don’t have that much time, this is a perfect role for you. Because we need you, we need more mentor Angels, we need people to give back. Everybody is unique. But there’s also those carrot, those, those things that kind of thread together. And helping somebody else is something that I cannot describe to you in enough words on the power it gives to you. I look at it as a promotion in your journey. That’s how I look at it. So when you’re thinking like what’s next for me, try to give back in a way. And you’ll see how therapeutic it is for you.

Jackie Herigodt 
So this is how our program works. If you are in fact interested, whether you want to become a mentor Angel and give back or if you’re still looking for support, we actually do both at the same time. If you’re like, Hey, I’ve had this experience, however, I’d like to talk to somebody about this. So I do want to detail that just a bit. So a lot of people think that we connect only on cancer type to cancer type. That is not the case. We are connecting on if somebody wants to participate in a clinical trial and they have a diagnosis with cancer and they just want to talk to somebody else who also participate in a clinical trial. Come to Imerman Angels. We can connect you to someone that’s been there. If you’re a single mom going through cancer, and you want to talk to somebody else who had to deal with children while going through cancer, here we are. If you’re a caregiver, and you’re going through this, and I’ve been told this by caregivers, somebody said to me, Hey, if the cancer didn’t kill them, I was going to because caregivers, they are dealing with a lot sometimes and some of our patients can be a little challenging to deal with. And so the caregivers need an outlet as well. And so we can get you connected to other caregivers. So all of this to say is please think about where you are in your journey. And if you just need that little bit of support. The beauty is you could talk to somebody once or twice and be done. Or you can meet your next best friend, you never know where this will land you. But it’s super easy. You just call us or you go to our website, we get you registered, you do sign up for an appointment, and then you talk to one of our Cancer Support Specialists. And then they ask you these questions and prioritize your needs. And then we also can help navigate you to other resources you might need as well. So we’ll get you connected to a peer, but also hear what else is going on and let you know some other resources that might be out there to be helpful to you as well. So we go ahead and get you connected and then we send you a survey. And we always tell people listen, if you need an additional match, because sometimes your treatment changes or you find that you need additional support and something else you just come back to us and we’ll get you connected to another mentor as well. For becoming a mentor Angel, it is very similar. You’ll go ahead and go to our website and register or call. And don’t worry, we do train our mentor Angels. We always tell you that the bulk of your training is your experience. I can’t train you on that, but definitely can give you some guidelines of what to do, what not to do, those kinds of things. We give you a mentor Angel training video. And we also give you a guide book, and we talk to you about it. And also we give some trainings throughout the year.

Jackie Herigodt 
So these are the stats. Always people are asking about the numbers. So we like to include that we are not just a Chicago organization. A lot of people think of us that way. We are not just a nationwide organization. We are actually global. We are in over 113 countries. We’ve had over 14,000 mentors register with us. And we’ve made over 36,000 connections over all time. So that’s one peer to one mentor, and we’ve connected them. So we did just have our 17th birthday. And our top five cancer types are there as you see. So if you have any more questions about any of these stats, please let me know.

Jackie Herigodt 
But this is a community event we have coming up. As I mentioned, we do have several community events just like this kind of thing throughout the year. Our upcoming one is going to be a very interesting conversation. We decide on what topics we’re going to cover based off of our community’s feedback. And so this one was something that a lot of people were asking for. Imerman Angels is not just this organization that is just matching one person and match another person. That’s not it. We want to make sure that we’re empowering the people that come our way. And so this particular event, I think, will help empower people that are thinking about what is their legacy and how can they go about it because some people feel like they’re not artsy so they can’t like create a beautiful painting or something like that, which could be a legacy project. Some people feel like they are not brilliant, and they can’t write letters. Well, the point is that during this event, we’re going to show so many different ways and give you so many resources to give you that empowerment back to let you feel like you can create a legacy project all your own.

Jackie Herigodt 
Here are some of the organizations that we work with. So this is just to give you an idea. So basically, these organizations have said, Imerman Angels is doing this peer-to-peer, I don’t want to recreate the wheel, you guys do it. So they’ve come to us, and they’ve said, please match our people for us. And we’re grateful for it. So we definitely have a variety, these are just some of them, the screen is only so big. So I just wanted to give you an idea of the variety of organizations that we partner with. So if anybody’s watching and they want to partner with us, there’s an opportunity there for you.

Jackie Herigodt
So other resources that are available to you, you can go to this link on our website, very simple, but we put together a grief toolkit and definitely get good feedback on it. Everybody that is impacted by cancer grieves, whether they lost someone or something. Cancer definitely impacts everybody. And you can grieve with what was or what isn’t. And this tool will help you through that. We have other cancer resources like a journal and family building resources and a guide that we put out frequently. So you please feel free to reference our website for that as well.

Jackie Herigodt 
And then this is just our contact information. And if you use that QR code, it takes you over to becoming a mentor. But you can definitely navigate through our website after that. So I give you all thanks, and especially Colontown for reaching out, available for questions. Thanks so much.

Meagan Lockhart 
Thank you so much, Jackie. That’s fantastic. And it’s awesome that you guys are also working with Bright Spot Network. They were part of our first Resource Fair on the topic of parenting. So that’s fantastic. And I’ll be sure to put that in our notes to put in our events calendar as well for our members to check out.

Jackie Herigodt
Thank you.

Imerman Angels

Imerman Angels provides comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there.

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Mental Health America

Mental Health America

Mental Health America provides support through community education, screening and research, and advocacy and public policy.

Niya McCray-Brown
Hi everyone. It’s a real pleasure to be in this space with you and to share space with you around mental health in particular. My name is Niya McCray-Brown, just like Meagan mentioned, and I am the Director of Community Engagement at Mental Health America’s national office. I’m going to share my screen because I have a presentation to share with you all to spot some of the resources that we offer from our national office, but I’ll also be sharing some information about our national affiliates. We have almost 150 affiliates nationwide. So the chances that there’s an MHA near you is high. We are missing, I believe it’s four states out of the 50. So if there’s not an affiliate near you, hopefully we can provide you some support from our national office. Just give me one sec so I can share my screen. Fantastic. Everyone should be able to see that now. Can I get a thumbs up? Okay, yes, we are good to go. Awesome. So Mental Health America is actually the nation’s first mental health advocacy organization. I know you guys might be familiar with others, such as NAMI, or the American Foundation for Suicide Prevention, AFSP. A lot of those other organizations are actually born out of the movement that was started in 1909 by Mental Health America. And we focus primarily on mental health advocacy and breaking mental health stigma through the lens of research, public education, and our national affiliate work, where they provide direct services to the community.

This is just a little bit of information about our founder. His name is Clifford Beers. And Clifford Beers is actually an individual who had lived experience of a mental health condition and experienced firsthand a lot of the disparities and just unfortunate oppression that existed in the mental health system of institutionalization in the early 1900’s. He founded our movement by just sharing a really pivotal quote that we like to express in a lot of our work now, which is that he wanted to fight in the open. Unfortunately, so many folks who experience mental health concerns and mental health conditions feel like they have to do so by themselves and they have to do so behind closed doors. And so a big part of our movement is around breaking stigma, and just allowing folks to talk about their mental health openly, and giving them the tools to do so as well.

This is a little bit about our mission statement and some of the lovely staff that I get to work with every day at our national office. Mental Health America advances the mental health and well being of all Americans through direct service, public education, research, advocacy and public policy. We drive progress with the public health perspective through community based solutions and a National agenda. So what that means is that even though we are at the national office, we do a lot of our work and reports to appeal to a wide variety of folks across the Nation. We really aim to meet folks where they’re at in communities that they serve, so that they have tools that they need to impact real change day by day, as well.

This is just a snapshot of Mental Health America and our national office. So we have 143 local affiliates in 39 states. So we’re actually missing 11 states out of the 50. And we have 6.9k staff, including our national office, that serve individuals across the country. This is just a little bit more information about some of the work that we do and I’m going to talk about these programs along the side, more in-depth on future slides.

So one of the biggest things that we do is public education. And this is probably where there’s going to be a lot of takeaways for those of you in the audience today. We do about nine campaigns throughout the year where we focus on providing information to individuals across the country on a variety of mental health topics, different populations, including youth and their parents and caregivers, teachers, coaches. May is Mental Health Month, so that’s usually when we have our largest campaign that’s meant to provide information about mental health basics, Mental Health 101, information about different mental health conditions and strategies that you can use to promote wellbeing and prevention in your mental health regardless of what phase of your journey you are in.

July is BIPOC Mental Health Month. So we do a lot of promotion and campaigns in July around mental health for BIPOC communities and the distinct disparities that exist for those communities, as well as the ways that they thrive despite those disparities. You can see an example of some of these images on the slide right now. And then we also do research reports. So individuals who are really focused on maybe academic implications or political implications of the work that we do, can use our reports to talk to policymakers, professors, different folks in higher education to be able to convey the importance of mental health in their communities as well. We also do webinars. So similar to what you guys are doing right now, Mental Health America does about two to three webinars per month on a variety of categories. We actually have one today. I’m speaking to one of my good colleagues, Jackie, who runs our webinar program. I was like you and I are going to be doing the same thing in just a few moments, which is talking to folks about their mental health. But if you guys are interested, I’ll actually include links to our webinar catalog, if you will, all of the different topics that we’ve covered. But we like to cover a wide variety of information there, including we’ve done some webinars on those with chronic illness, we’ve done some on parenting, we’ve done someone just general goal setting, we typically try to do that around the new year, because everybody’s like new year/new me. And just a variety of resources that we keep in our webinar catalog. But we have so much information. There’s so much information in our toolkits, so much information on our website through articles and blogs. And that’s really a testament of our public education department and all of the hard work that they do there.

Our screening program is also really popular and just like Meagan was mentioning before, mental health is a journey and at Mental Health America, we believe that folks ebb and flow from wellness to sickness throughout their lifetime. There’s not just like those people over there who have a mental health condition. All of us have a mind and therefore all of us have moments of prosperity and thriving, and some of us have moments of suffering. And so our goal is to kind of meet individuals where they are regardless of where they are on that spectrum and be able to provide supports. One of the ways that we do that is through our National Screening and Prevention Program, where we offer 11 unique screenings on a variety of mental health conditions from anxiety, to depression to ADHD. And the screenings are usually pretty quick to take, they take about 10 minutes to complete. They’re anonymous, they are completely confidential, and they’re free. So if you’re ever having a concern, or even if you just would like to kind of check in on your mental health, you can go to the MHA screening program, select a screening, which will also provide links to and I believe there’s going to be a handout with some of that information after today as well. But you can go and take a screening and then after you take it, it’ll give you some information about how you score and you can use that to talk to a primary care provider or family member, a loved one or your therapist if you have contact with one about some of the things that popped up on that screening. And different next steps. We provide a few next steps. So we’ll provide DIY tools, worksheets, different things that you can do to prioritize your mental health based on your results. But if you’d like to use them to kind of find support in your community, you can use your screening results on that as well. Our main goal with offering the screening program is for folks to have autonomy and independence with their screening and to have self awareness about how mental health is showing up in their daily lives. So that they can seek the support that they need either from the results that we offer or in the communities that they exist within.

These are some of the things that our screening is meant to assess. So we like to use very plain language when we’re describing some of the symptoms that might pop up for an individual who’s experiencing a mental health condition. Things like feeling sad, empty, hopeless, or worthless are some of the things that we assess in our screening program, as well as feeling moody or anxious. We don’t like to use a lot of scientific language because we want everyone to feel that they have access to the mental health support that they need and that literacy should not be a barrier to receiving that support. So this is some of the plain language that we use in our screening program and in some of our public education materials as well just to support folks in being able to get connected to the next step of support.

And this is some information that you can use to get in contact with us. If you have a question, if you want to submit some feedback to our national office, you can do so either by phone, or you can get in contact with us online. And then there’s some of our social media handles at the bottom as well. That’s all I’ve got. From what I understand, there’s going to be a question and answer portion later so if anybody has any specific questions about our work or the ways that you can utilize our resources, I’d be happy to answer those questions. And then while the other presenters get going, I’ll drop some specific links into the chat.

Mental Health America

Mental Health America provides support through community education, screening and research, and advocacy and public policy.

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